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Welcome to Help 4 HD Live! We are proud to broadcast credible information and education to the Huntington's disease community on a weekly basis. Help 4 HD Live! broadcasts every week providing vital information and inspiration to our Huntington's community. We have been blessed to interview many of our JHD/HD researchers, medical professionals, care providers and the pharmaceutical industry for six years. Join our Hosts, Katie Jackson each week for incredible programming and don’t forget to ...
 
An episodic overview of the history of Rock Music. Think of it as a college level Rock N Roll 101 course...or if you prefer, a multi-part audio documentary. We take in the music, culture and technology of the second half of the 20th Century to prove how significant and how much impact this art movement had to the times, while still resonating today. It’s carefully researched, fully scripted and highly produced...a little bit academic in tone, because we do our homework. But we throw in a lot ...
 
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show series
 
Nicola is the co-founder and editor-in-chief of RARE Revolution Magazine, a not-for-profit magazine and movement dedicated to amplifying the voice of rare disease stakeholders globally. RARE Revolution is also the home of the dedicated youth platform, RARE Youth Revolution which Nicola oversees. Nicola is co-founder and trustee of the charity Teddi…
 
Brenda started at the UWMC in 1995 after graduating as a registered nurse. She has devoted her career to working exclusively with patients with neurological disease in Urology. She began working half-time with patients and families in the Huntington’s disease clinic 10 years ago while continuing to work in Urology. Brenda has a passion for her pati…
 
Dr. Wild is a Professor of Neurology at University College London, a Consultant Neurologist at the National Hospital for Neurology and Neurosurgery in London’s Queen Square, and Associate Director of UCL Huntington’s Disease Centre. He runs clinics in general neurology, neurogenetic movement disorders and Huntington’s disease. He leads a team of re…
 
Toronto author and public speaker, Erin Paterson, tested gene positive for Huntington’s Disease (HD) in 2006. Shortly after she started suffering from depression, then received more crushing news, she was infertile. Despite those diagnoses she was determined to have a family and live a joyful life. Her stories have appeared on over a dozen sites in…
 
Lisa Mymo is responsible for the strategy and execution of AllianceRx Walgreens Prime’s specialized programs, services and offerings. Lisa and her teams are focused on best in class performance in the areas manufacturer and HUB services, patient access, patient services, financial services, implementation, pharma solutions and pharmacovigilance and…
 
Sophie St-Cyr, PhD of Children's Hospital of Philadelphia joins us to talk about the heart. Heart disease is the second cause of mortality from Huntington'sand patients present an increased incidence of heart failure and a smaller heart. This heart pathology will need solving to improve the longevity and quality of life of HD patients. Dr. St-Cyr w…
 
Louise Vetter is the Chief Executive Officer of the Huntington’s Disease Society of America (HDSA), the largest public not-for-profit organization devoted to the fight against Huntington’s disease (HD). Since joining HDSA in 2009, she has led the expansion of the Society’s reach with new programs and initiatives to strengthen the web of support for…
 
Christian Neri is a Research Director with a demonstrated history of working in the research industry. Skilled in genome science, computational biology, machine learning, translational research, R&D, target discovery, drug discovery, molecular diagnosis, clinical research, predictive analytics, business development, international business, and stra…
 
The fuse was lit in 1966. Jeff Beck, Jimmy Page, John Paul Jones, and Keith Moon came together to record a proto-metal classic. After the session an offhand quip from Keith Moon sticks with Jimmy Page. Then we meet The G; the imposing Peter Grant. Led Zeppelin’s fearsome tough-guy manager was a key reason why Zep dominated the rock landscape in the…
 
Mike is a Neurology Registrar at the National Hospital for Neurology and Neurosurgery in London, and works on clinical trials in genetic diseases. He graduated from Cambridge in 2009 and completed a PhD in neurogenetics at UCL in 2018. His research with Prof Sarah Tabrizi uses stem cells and cutting edge genetics to understand neurological diseases…
 
Daniel O’Reilly Ph.D. is currently a Post-Doctoral Associate at Khvorova Lab, RNA Therapeutics Institute,University of Massachusetts Medical School, Worcester, MA. Previously a Ph.D. student in Prof. Masad Damha’s lab at McGill University in Montreal, Canada. Dan earned his MSc in Chemistry from the University of Southampton, UK. It was there that …
 
Francis O. Walker, MD, Professor of Neurology and Director of the Movement Disorder Clinic at Wake Forest University, has had significant involvement in clinical care and research in Huntington’s Disease for over 30 years. Following residency training in Neurology at the University of Iowa and fellowship training in Movement Disorders at the Univer…
 
Dr. Hugh Rickards and I delve into the topic of diagnosing HD and what it means. "People with HD may consult with a psychiatrist, a neurologist and a psychologist for their diverse symptoms, but what they really need, says Hugh Rickards, FRCPsych, MD, is a “Huntingtonologist”: A doctor who has been trained in all the diverse manifestations of the d…
 
Professor Hugh Rickards is a self-avowed "HD-nerd". He loves all things HD and has been running a service for people with HD in Birmingham, UK since 1997. He's particularly interested in how people with HD view the world. He founded the HEATED project (Huntington's Equal Access to Effective Drugs) in 2020 to identify any barriers to effective treat…
 
Ashley Clarke's bio: I am 28 years old and Huntington's first entered my life when i was around 14 years old, with the positive diagnosis of my dad. From the age of 17, i cared for my dad alongside my brother, attended school/ university, worked part-time and got involved with my local HD community. I was a volunteer, service user and board member …
 
We talk with Dr. Natalia Rocha about research she's been working on, specifically "Sex Differences in Huntington's Disease: Evaluating the Enroll‐HD Database" Dr. Rocha joined The University of Texas Health Science Center at Houston as a Postdoctoral Research Fellow in the Department of Psychiatry and Behavioral Science in January 2016. Since then,…
 
Ben joined NHPCO in October 2020, bringing 30 years of leadership experience in educational, healthcare, and social service settings. Prior to joining the NHPCO senior leadership team, Ben was with Hospice of the Chesapeake where he served as President and Chief Executive Officer (2015-2020) and Chief Operating Officer (2013-2015). Prior to relocat…
 
Carlos Briceño has started a new podcast that focuses on the caregiver journey and having a healthy emotional outlet¨ through creativity. This includes original poems, music and more. You can learn more about the podcast and submit content at: https://sharingaboutcaringpodcast.wordpress.com/ You can also read Carlos' column about caregiving at: htt…
 
Dr. Tamara Maiuri works as a Research Associate in Dr. Ray Truant’s lab at McMaster University in Hamilton, Canada, where her research is focused on the role of the huntingtin protein in DNA repair. Tam is also an active member of the HD community who regularly participates in fundraisers, education events, and knowledge translation through HDBuzz.…
 
Rock N Roll as the First Draft Of History We begin in the midwest college town of Kent, Ohio, in the late spring of 1970. We’ll meet three future rockers--students at Kent State University, barely out of their teens--who will be changed forever by what they witness. We’ll check in on Motown, where the fluffy pop “Sound of Young America” is still al…
 
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