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Patients Rising brings its unique and established brand of patient advocacy to a weekly podcast, featuring honest and helpful discussion about issues impacting those with chronic illness. Executive Director Terry Wilcox hosts the show, with Robert "Dr. Bob" Goldberg, Co-Founder and Vice President of the Center for Medicine in the Public Interest.
 
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show series
 
Over the past 30 years, cancer death rates have declined by 33%. Ahead of World Cancer Day, hematologist Dr. Rafael Fonseca joins the podcast to talk about the latest innovations and improvements in cancer care delivery that have contributed to this decline. Plus, many patients with chronic diseases depend on employer-sponsored health plans. But lo…
 
This year, six biosimilars for the top-selling medicine, Humira, will enter the market, with the first launching on January 31, 2023. Increased competition from biosimilars can drive down costs. But experts argue that insurers and pharmacy benefit managers will receive those savings – not patients. On this episode, hear from pharmacists, health eco…
 
Can a divided Congress work together to help patients? Health policy experts Jon Deuser and Mike Gaffin tackle that question. They explain what health care issues Congress might address, including the lack of transparency around pharmacy benefit managers (PBMs), and talk about the key players on Capitol Hill who will be shaping health policy. And p…
 
A new Alzheimer’s treatment received FDA approval under the accelerated approval program. Former FDA Associate Commissioner Peter Pitts explains how the accelerated approval pathway leads to incremental innovation, or building blocks to develop the next generation of medicines for all patients. Plus, patient advocate Katie Coughlin shares her exper…
 
Last year President Biden signed the Inflation Reduction Act into law, which included several changes to Medicare. Terry and Dr. Bob discuss the three changes that start this year, including the $35 monthly cap on insulin, and more. Hosts: Terry Wilcox, CEO, Patients Rising Dr. Robert Goldberg, “Dr. Bob,” Co-Founder and Vice President of the Center…
 
Have big goals for 2023? Set yourself up for success by setting “tiny habits.” To help you get a head start on your new year goals, listen to this rerun of our conversation with behavior scientist BJ Fogg. He shares his advice on how to set what he calls “tiny habits” and how it can help patients with chronic diseases manage their health care routi…
 
How do patents work in the medical space? And how do they lead to new medicines, therapies, and devices? This patent-explainer episode answers those questions and more. Dr. Ron Cohen, a physician and President and CEO of Acorda Therapeutics brings listeners inside the patent process, including how they spur new innovations, and how he’s witnessed t…
 
Medicare’s proposal to reduce funding to home health care would deal a major blow to patients. But a new bill in Congress could help avert these catastrophic cuts. Guest Joanne Cunningham, CEO of the Partnership for Quality Home Healthcare, explains why this bill is a must-pass to protect patient access to home health services. Plus, learn about a …
 
Promising clinical trial results for a new Alzheimer’s treatment are bringing hope to patients and caregivers. Hosts Terry and Bob discuss the needs of Alzheimer’s caregivers and how to measure if a new treatment helps meet those needs. Plus, TikTok personality Kris McCabe (@lifewithgrams) joins the show to share how she became a caregiver for her …
 
Congress is moving quickly to pass legislation before the year ends. Hosts Terry and Bob discuss the health care bills that, if passed, could increase patients' access to affordable and transparent care. From telehealth to generic drug access, learn how this legislation would impact you. And hear from Dan “Dry Dock” Shockley, a Navy veteran living …
 
In our special Thanksgiving episode, co-host Dr. Bob Goldberg speaks with Hillary Blackburn, PharmD, Chief Pharmacy Officer of Dispensary of Hope. Hear how the organization has channeled pharmaceutical donations to chronically ill patients in low-income communities. Plus, how the program has improved the health of communities all across the country…
 
In this episode, get the latest solutions to ensure patients get the care they need when they need it. That includes the life-saving medication naloxone which can reverse the effects of an opioid overdose. Despite standing orders in many states, persisting stigmas and a lack of education and awareness has made it difficult for patients to get. Jeff…
 
This Veterans Day, we’re thankful for the brave service members who have sacrificed so much to protect our country. But when many veterans return home, their next battle is with a health care system that makes it difficult for them to access the care they need. To spearhead solutions and improve health care for veterans, Patients Rising has partner…
 
Congress has the power to improve patients’ access to affordable and transparent care. That’s why it’s important for patients to know which lawmakers support legislation that positively impacts patients across the country. To make this information accessible, Patients Rising Now created a beta 117th Congress Advocacy Scorecard. This inaugural repor…
 
In this Halloween episode, get the biggest health care horror stories of 2022 that impacted patients all across the country. From lack of access to care to burdensome insurance delays, as detailed by migraine patient advocate Yuri Cárdenas. Plus, learn about the solutions to these challenges that can protect future patients from experiencing these …
 
October is American Pharmacists Month, so we speak with Georgia Representative Buddy Carter about how his experiences as a pharmacist inspired him to advocate for patients and providers in Congress. He shares how independent, rural pharmacies are being put out of business by PBMs, and how their closures would be catastrophic to patient access. Hear…
 
Data shows more and more young people are being diagnosed with colon cancer. How do we get more screening appointments on the books to keep people healthy? Learn how a new campaign is changing public opinion around colonoscopies to cut through taboos and prevent cancer before it can even develop. All with a little help from actors Ryan Reynolds and…
 
Specialty medications can come with a high price tag and specialty mail-order pharmacies, mostly run by pharmacy benefit managers, have frequently created delays in getting necessary medications to patients. However, new technologies have created a way for clinics and community practices to provide specialty medications to patients directly from th…
 
Is the cost of your health care going up? Have you struggled to access the care your doctor recommends? A group of physicians and health care experts are working to address these growing problems and make care patient-centered. They propose several reforms that would protect the doctor-patient relationship by reforming the role of hospital and pres…
 
Pharmacy Benefit Managers (PBMs) have become embedded in the ecosystem of drug pricing– but these middlemen are one of the reasons patients see high prices at the pharmacy counter. This episode is a crash course in everything drug pricing with a focus on PBMs, from their inception to their influence on health care costs. Guest Antonio Ciaccia, drug…
 
An ongoing 10-year community-based project is improving the health of residents through investments in long-term health programs. Esther Dyson, the founder of Wellville, explains how community collaboration and resident involvement can have positive impacts on quality of life. Plus, Terry and Dr. Bob discuss the latest health news, including AARP’s…
 
It takes decades of research, millions of dollars in funding, and numerous failed attempts to develop and approve a new drug for patients. Private investors have helped fund pharmaceutical research and development to bring patients life-saving medicine – but recent policy changes may slow that process down. Venture capitalist Stan Fleming explains …
 
In the rare disease community, early diagnosis can put patients on a treatment plan faster and improve outcomes. But that depends on accessible and affordable screenings, genetic testing, and holistic care. Thankfully, there are policy solutions to make that a reality. August marked Spinal Muscular Atrophy (SMA) Awareness month, so we hear how this…
 
Is your Medicare plan giving you the best deal? It’s a tricky question since seniors have no tools to easily determine if their plan has the best price or coverage compared to others. There’s also a lack of transparency in health plans, particularly with third-party endorsed plans, like those sponsored by AARP. If any organization has a financial i…
 
At-home genetic testing allows expecting parents to see if they might be carriers for genetic conditions, like cystic fibrosis or sickle cell. But the data from these tests are only one part of the equation. Patients need access to experts to help them interpret and apply the findings to their health care journey, which can include family planning.…
 
Hospitals and insurers are now required to share their prices and negotiated rates with the public. The problem? Most of the data is inaccessible to patients. Marcus Dorstel, Vice President of Operations at Turquoise Health, shares how his team has sifted through the data to create a tool patients can use to shop for health care services, compare p…
 
Congress inches closer to a massive, 725-page spending bill referred to as “Reconciliation.” It includes several drug pricing provisions that claim to lower Rx costs for seniors. But a closer look reveals that those savings aren’t as widespread as patients might expect. Terry and Dr. Bob recruit the help of Medicare policy expert Doug Badger to unc…
 
New procedures and nonopioid pain management give patients cutting-edge treatment options. But they’re frequently out of reach due to a lack of insurance coverage. Hosts Terry and Bob discuss how the bipartisan NOPAIN Act seeks to change that. Plus, Dr. Stanley Golovac discusses nonopioid options for pain management, and how expanded access can imp…
 
In this special bonus episode, Patients Rising Now Executive Director Terry Wilcox provides her perspective as a caregiver to seniors amidst ongoing debates in Congress over how to lower drug costs. She shares why Medicare price negotiation, a provision within the reconciliation package, won’t lower costs for seniors at the pharmacy counter, and wh…
 
For 17 years, the gastroparesis community has fought for the FDA to allow it access to a treatment they say is necessary to improve quality of life. Gastroparesis advocate Michael Smith details the efforts to make sure that patient voices spur action at the FDA. Plus, what this means for the broader impact of the FDA across the entire chronic disea…
 
Biosimilars have the potential to lower costs. But due to middlemen like pharmacy benefit managers (PBMs), those savings don’t always trickle down to patients at the pharmacy counter. How can we fix this system? Julie Reed, executive director of the Biosimilars Forum, joins the podcast to explain what biosimilars are, why uptake has been slow, and …
 
Tired of telling your health care history over and over again to providers? Jessica Lunshof, a former nurse and caregiver found herself in this cycle that wasted time and placed an emotional burden on her and her family. She joins the podcast to share how she took this challenge and developed a digital solution - TAMVOES - to compile a patient’s he…
 
Accelerated approval drugs have given patients access to care they otherwise would have waited years for. A new study shows that these drugs account for less than 1% of Medicaid spending - yet programs have placed restrictions on these medicines to curb spending. We hear from the author of that study, Dr. Kenneth Thorpe, about its findings and alte…
 
Keyla Caba is a patient advocate who lives with Crohn’s disease and ulcerative colitis. Her son was also recently diagnosed with a chronic disease, and she shares the challenges of being both a patient and a caregiver, mental health, and affording high copays for the care she needs. In this special episode, Kate Pecora shares her conversation with …
 
This week, patients with chronic disease from across the country convened in Washington D.C. for the We the Patients Fly-In. They met with members of Congress and their staff to advocate for several pro-patient health care bills that would improve access, affordability, and transparency. In this episode, we catch up with several advocates in the ha…
 
No insurance? No problem. Blueberry Pharmacy in Pittsburgh is forging the path for a new kind of pharmacy. By cutting out the middlemen in the supply chain, Blueberry Pharmacy is able to provide its customers with inexpensive medications. It’s more transparent, and preserves the personal touch of an independent community pharmacy. How’s it possible…
 
Precision medicine harnesses the power of genetic data, which can improve treatment regimens and overall outcomes for patients. But accessing that data remains another challenge. Field correspondent Kate Pecora speaks with advocate Christine Von Raesfeld about how patient access to data can be a game-changer, and what can be done to expand that acr…
 
The formula shortage crisis has been devastating for patients with rare metabolic conditions, like PKU, who depend on specialty formulas daily. We hear from patients and families impacted by the shortage, including Lillian Isabella and Sarah Chamberlin, executive director of National PKU News. But patients have struggled to access and afford these …
 
A shark has entered the prescription drug waters. Entrepreneur and ABC Shark Tank investor Mark Cuban founded the ‘Mark Cuban Cost Plus Drug Company’ which aims to slash prices, improve transparency, and provide greater convenience to patients. How? It cuts out the middlemen, pharmacy benefit managers, from the supply chain. Plus, as ALS Awareness …
 
“Your medication is no longer covered” are the words no patient wants to hear. Yet this is a common occurrence for patients with rare diseases who are on private health insurance plans. In an effort for plans to save money, they’re dropping coverage for rare disease treatments and sending patients to patient assistance funds. But once those funds a…
 
In recognition of ALS Awareness Month, we get a report from the frontlines of ALS research, including new breakthroughs that impact patients. Dr. Sharon Hesterlee, the Chief Research Officer at the Muscular Dystrophy Association, gives us the big picture on ALS research and other neuromuscular diseases. Plus, Terry and Dr. Bob discuss new health le…
 
Have you ever felt overwhelmed or confused in your health care journey? Many patients juggle numerous phone calls and appointments with labs, pharmacists, and specialists, while also trying to understand what is and isn’t covered. To help, some health plans have recruited nurse navigators, like Faith Barron. In this episode, Faith provides a look i…
 
Frustrated with the health care system? Want to improve health care access, affordability, and transparency for you or a loved one? Learn how to make your voice heard by decision-makers on Capitol Hill by joining us for our 2022 #WeThePatients Fly-In happening on June 14th and 15th in Washington, D.C. Terry and Dr. Bob outline the top policy priori…
 
Transportation to and from appointments, or lack thereof, is a major hurdle facing patients who contact our Patients Rising Concierge team. Any delays caused by transportation have a domino effect on a patient’s healthcare journey and can lead to poor outcomes. Samantha Smith, our Patient Navigator at the concierge desk, handles transportation chal…
 
The access and affordability challenges that face patients with Alzheimer’s and diabetes are not uncommon. In fact, they impact all patients within the chronic disease community. Hosts Terry and Dr. Bob explore underlying issues throughout the healthcare supply chain that have hindered patient access, including rebates. This follows the House of Re…
 
One reason behind high costs at the pharmacy counter? Pharmacy benefit managers. PBM practices, like clawbacks and spread pricing, not only hurt patients but also impact community pharmacies that serve rural and underserved populations. In this episode, the Patients Rising team gets into community pharmacies with Ronna Hauser and Matthew Seiler of …
 
$0 deductibles and $1 prescriptions. It sounds almost too good to be true, but companies across the country have made these health plans a reality for their employees. For the past two decades, the cost of insurance premiums and deductibles have skyrocketed, leaving Americans with medical debt, constant switching of coverage, and deductibles that a…
 
Healthcare discussions in Washington are in full swing this week. Both the House and Senate meet to discuss a multitude of bills affecting everyday Americans, specifically those with rare and chronic diseases. Hosts Terry Wilcox and Dr. Bob break down the D.C. lingo and highlight three healthcare bills that will shape access to care and elevate pat…
 
Will free vaccines for Medicare patients improve health and lower overall costs? The quick answer, maybe. Doug Badger, former policy advisor to the White House, explains the pros and cons of eliminating cost-sharing for preventative vaccines under Medicare, and what it means for patient health and finances. Are you also experiencing longer wait tim…
 
How can low-income communities afford costly medications? A government program called 340B, which was originally created to help low income patients, now generates significant income for hospitals. Find out what caused this program to falter and how Congress can get it back on track with today's guest speaker Dr. Bill Smith. Dr. Smith, the current …
 
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