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Retina UK

Retina UK

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Retina UK supports people affected by inherited progressive sight loss and invests in medical research to ensure that people an lead a fulfilling life, now and in the future.
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This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2024 (Issue 184). You can download a copy in PDF and Word format on the Retina UK website: ⁠⁠⁠RetinaUK.org.uk/resources⁠⁠⁠. Contents in this edition are as follows: A landmark anniversary on the horizon (Tina Garvey) Time for learning and connecting Join our Gene Team this…
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Hear our innovative research grantees discuss their projects and the exciting progress they are making, and see how your gift can make a real impact this Big Give. Our panel includesProfessor Majlinda Lako:Professor Majlinda Lako is the co-director of regenerative medicine stem cells and transplantation at Newcastle University. Professor Lako is a …
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Join us in this exciting episode of the Retina UK Podcast as we introduce our new chair, Kathy Evans. With a wealth of experience and a passion for supporting those affected by retinal conditions, tune in to learn more about her background, her commitment to advocacy, and the innovative initiatives on the horizon for Retina UK.…
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The latest e-Newsletter from Retina UK. If you would prefer to receive this content by email, please subscribe via our website: https://retinauk.org.uk/get-involved/mailing-list/. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan eff…
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Join us for an inspiring webinar where four artists share their creative passions and journey with sight loss. In this session, you’ll hear from four artists: Tina, our gifted Christmas card designer, will share her journey of creating intricate and beautiful designs. Adrian Paternoster, a skilled artist, will offer insights into his craft, where h…
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This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2024 (Issue 183). You can download a copy in PDF and Word format on the Retina UK website: ⁠⁠⁠RetinaUK.org.uk/resources⁠⁠⁠. Contents in this edition are as follows: TRACK 2: Our Annual Conference is heading north (Tina Garvey) TRACK 3: Our ever-popular Annual Conference he…
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Hosted by Retina UK’s James Clarke and Aysha Ahmed, this session is in conversation with 3 young adults, who have turned challenges into triumphs. Listen to their gripping journeys and exciting plans for the future. Discover the power of peer support and connect with a community that understands. Guest Speakers: Karolina Pakenaite: An inspiring adv…
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Listen to Matthew Carr, Special Projects Lead at Retina UK as we discuss accessible voting during the general election. Please find resources mentioned in this episode below: Call the Helpline: +44 0300 111 4000 Email the Helpline: helpline@RetinaUK.org.uk RNIB: https://www.rnib.org.uk/get-involved/support-a-campaign/voting-and-elections-what-you-n…
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During Loneliness Awareness Week, we're hosting a special webinar to address the challenges faced by individuals with sight loss when it comes to travel and mobility. Research by RNIB has highlighted the critical need for enabling greater fulfilment and freedom through travel, with a significant impact on quality of life. According to their finding…
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Did you know May is National Walking Month? As part of Mental Health Awareness Week, we're exploring the power of movement. As the weather turns warmer and we are happier venturing out a little more, we look at the activities that some of our communities are getting involved with. Getting out in the fresh air is good for sole, in fact 'movement' is…
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Join Research Development Manager, Kate Arkell as she speaks to our latest research grantees about their projects. PhD studentship: Dr Matteo Rizzi, UCL Institute of Ophthalmology Investigating photopsia and photophobia in Stargardt disease. PhD studentship: Chloe Brotherton, Edinburgh University Understanding why different RPGR gene mutations can …
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This webinar was broadcast live on Thursday 21 March 2024. It is available in video format on our YouTube channel: https://youtu.be/oF5DP6XUsXk Have you ever been tempted to take part in the TCS London Marathon? In 2022 the TCS London Marathon raised £58.3 million for charity so it’s a vital source of income.Our Events and Community Fundraising Man…
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This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2024 (Issue 182). You can download a copy in PDF and Word format on the Retina UK website: ⁠⁠RetinaUK.org.uk/resources⁠⁠. The short piano music at the beginning of thisrecording is a tribute to Norman Pampel FCA for his much acclaimed role as honorary treasurer of the Brit…
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Cataracts occur fairly frequently and at a relatively early age within the Retina UK community of people with inherited retinal conditions. A question that comes up over and over again is whether or not to have cataract surgery. People seem to come across conflicting advice from medical professionals, and there is understandably a lot of concern ar…
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This webinar was broadcast live on Thursday 25 January 2024. It is available in video format on our YouTube channel: https://youtu.be/3kTVF8SoA0w. With more treatments coming through the development pipeline, we are all hopeful that more of those living with inherited sight loss will be offered the opportunity to take part in clinical trials in the…
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The latest e-Newsletter from Retina UK. If you would prefer to receive this content by email, please subscribe via our website: ⁠RetinaUK.org.uk/get-involved/mailing-list/⁠. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effective…
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This webinar was broadcast live on Thursday 7 December 2023. It is available in video format on our YouTube channel: https://youtu.be/x7ZyVxmla7I Nikolas is a bioinformatician, who uses computer power to tackle medical research challenges. He will be talking about his project to develop AI that will identify the genetic cause of an inherited retina…
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This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2023 (Issue 181). You can download a copy in PDF and Word format on the Retina UK website: ⁠RetinaUK.org.uk/resources⁠. Contents in this edition are as follows: Track 2: Reflecting back and looking forward (Tina Garvey) Track 3: Harnessing the power of AI Track 4: Searchin…
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A video version of this Webinar is available on our YouTube channel: https://youtu.be/0s1C3kXnXWc Join us for a brief overview of the Government’s Access to Work scheme, learn how it could support you at work, and hear the experiences of a number of people with inherited sight loss who receive an Access to Work grant.We will be joined by Josh Freeh…
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The latest e-Newsletter from Retina UK. If you would prefer to receive this content by email, please subscribe via our website: https://retinauk.org.uk/get-involved/mailing-list/. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan eff…
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We were joined for this popular ‘Ask the expert’ session by Samantha de Silva, a consultant ophthalmic surgeon at Oxford Universities Hospital Trust. She answered a wide variety of questions relating to inherited retinal dystrophies. If you would prefer to watch a video of the Webinar, it is available on our YouTube Channel: https://youtu.be/f_1UEV…
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The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit ⁠RetinaUK.org.uk/get-involved/donate/⁠ to sign up, or, if you prefer, call us on 01280 821334.…
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