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Join us on the Transplant Strong podcast, where we delve into the remarkable journey of organ transplantation. Hosted by Danny Hiles, a liver transplant recipient due to Wilson’s disease, each episode features heartfelt conversations with guests sharing their own inspiring transplant narratives. From emotional testimonies to groundbreaking research projects, we explore a range of topics relevant to the transplant community. Tune in for stories of resilience, hope, and the power of second cha ...
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Transplant Strong - Episode 44: Overcoming Chronic Illness with Clodagh Roberts. In this powerful episode of Transplant Strong, join us as we delve into Clodagh's remarkable journey of living with a chronic bowel disease that necessitated her consuming all her meals through tubes for many years. Despite the challenges, Clodagh and her family refuse…
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Hello, in this episode I chat with Lisa and we discuss the hospital bag essentials. This list will vary from person to person but this covers most items that you will find helpful and comforting. List includes Eye MaskMini Fan Hair BrushUnderwear of varying sizes Ear PlugsPhone Extra long charging cable and pegs or clipIpad (Tablet)Lip BalmPJ's / D…
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When the interviewer becomes the interviewee!This was a little chat Clodagh and I had before we got into the nitty gritty details of her very own transplant experience. I briefly discuss my experience of being diagnosed with Wilsons Disease.If you would like to hear more about my life with Wilsons Disease and life after a transplant then you can ch…
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Episode 43: Inspiring Journey of a Liver Transplant SurvivorIn this captivating episode of Danny Chats, join host Danny as he sits down with Robyn, an extraordinary liver transplant survivor from the U.K. Robyn's life took an unexpected turn when she experienced liver failure, necessitating an urgent transplant. Despite facing numerous challenges a…
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Episode 42 features special guest Victoria Yocum from America. Victoria is a fellow Wilsons Disease patient who also had a life saving liver transplant and in this episode Victoria talks me through how living with Wilsons Disease affected her life and how she became so ill she needed a liver transplant to keep her alive. At the time of recording th…
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Danny Chats episode 41 features special guest Lewis Evans. Lewis is a kidney transplant patient who will be competing for England and NI in the transplant games 2023 after finishing first in the 100meters at the UK games with an incredible time of 10.99 seconds. In this episode Lewis tells me about his transplant and how that has inspired him to co…
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In this episode I talk to Luke about the short film he has made called 'The Other Side' which you can watch on YouTube - https://youtu.be/qBWLfXlRxO4 This film is based around three families that have all been through the transplant process. The film focuses on how the parents felt during that time and what they did as family to get through. It als…
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Danny Chats Episode 39 features special guest Lisa Woodcock. Lisa had a liver transplant in 2021 due to having a liver disease called Primary Biliary Cholangitis (PBC) which her family has a history of although it is not fully classified as being a hereditary disease. Although there is medication to control the illness Lisa's body was unresponsive …
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Danny Chats Episode 38 features special guest Grey Brett. Grey is a liver transplant patient from Canada and in this chat we talk about Grey's transplant journey and how that led him to work with the Transplant Games and Move For Life Foundation. Grey has such positive energy and since his transplant he has been doing a lot to support the transplan…
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Danny Chats Episode 37 features special guest Vicki Lee. In this Episode Vicki talks us through her transplant process. Vicki explains the reasons she needed the transplants and tells me what she is up to a year after having the life saving operation. Its been a real joy to follow Vicki through her transplant journey on Instagram, if you want to gi…
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Danny Chats Episode 36 features special guest Eliza. In this episode Eliza talks to me about her heart transplant and how she came to find out that she would need one. We talk about life in hospital and moving from the children's ward to adult care and how that differs. Eliza talks about how her life is after transplant compared to before and we ch…
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Danny Chats Ep33 features special guest Margaret Elizabeth. In this episode, Margaret tells us how in her early twenties, Wilson's Disease left her fighting for her life. Over a very short period, Margaret became so ill she could barely walk, write or feed herself. As you can imagine, this was a hugely worrying time for her and her family. Once the…
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Danny Chats Ep32 Wilson's Disease; Special Guest Emilia Quezgo. My guest Emilia is from Mexico and she talks to me about her experience of being diagnosed with Wilson's Disease and how she has struggled to get the correct medication. The main Wilson's Disease medications are not available in Mexico so Emilia has had to apply for a special permit an…
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Danny Chats Episode 31 features special guest Caroline Tancredy. In this episode Caroline tells me how Wilson's Disease affected her and her twin sister Marry, who sadly lost her life before being diagnosed. Caroline was asymptomatic but when tested for Wilson's Disease she still had very high copper levels and was put on medication immediately. So…
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Danny Chats Episode 30 features special guest Jaskaran Singh. Jaskaran was diagnosed with Wilson's Disease in March 2017 but before that his Doctors had miss diagnosed him with Bipolar. Its very common for WD patients to be miss diagnosed at first as the symptoms also match up with many other diseases and illnesses. Once on the medication, Jakarans…
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Danny Chats Episode 29 features special guest Elisha Emerald. Elisha was diagnosed with Glycogen Storage Disease when she was 4 months old and this meant having lots of treatment and constantly having to worry about her health. When Elisha reached her 20's the Doctors told her she would not live for much longer without having a liver transplant. El…
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Danny Chats Episode 28 features special guest Denise Redeker. Denise had a heart transplant in 2018 and is very open about her journey through recovery. Denise faced a few obstacles along the way but is now doing really well and is often out running, hiking or holding charity events for Heartfelt Help Foundation. Denise is the founder of Heartfelt …
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Danny Chats episode 27 features special guests Jeff and Ryan aka The Kidney Boyz In this episode Jeff and Ryan tell me about their transplant experience and how that has lad them to join in at the Transplant Games and at Lyrics For Life. After meeting each other at hospital and then learning that they both lived in the same area Jeff and Ryan began…
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Danny Chats Episode 26 features special guest Brooke Gurrad. After joining Brooke on her podcast The Bonus Years to talk about my transplant journey it was a pleasure to have her join me on Danny Chats. Brookes need for a transplant was a huge surprise to her as she had had very good health up until her 20's. Over a very short time Brookes liver st…
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Danny Chats Episode 25 features special guest Jareb Gutierrez. In this episode Jareb tells me about his experience with Wilson's Disease, like me Jareb was diagnosed in his early teens. Like most Wilson's Disease patients the diagnosis took some time but one Jareb was diagnosed he was soon put onto medication. Jareb has been able to live a happy st…
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Danny Chats Episode 24 features special guest Hannah Sharma and we are talking about heart transplants. Up until 2019 Hannah had had no real bad health issues in her words she was living her life. Then during 2019 she had a bout of Norovirus and that was getting worse and worse but the GP's kept giving her antibiotics and that's all. Hannah became …
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Danny Chats Episode 23 features special guest Rachel McGrorry and we are talking all things Lung Transplant. Rachels medical story starts when she was just 4 years old and she was diagnosed with Rheumatoid Arthritis. The doctors did not think this would be an issue for Rachels organs but in 2011 Rachel got pneumonia and from then on she started to …
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Danny Chats Episode 22 features special guest Linda Schwebke who is possible the oldest surviving Wilsons Disease Patient. Linda's Wilson's Disease diagnosis came in 1974 after they had run many other tests on her due to being ill. The diagnosis came after Linda was sent for an eye test and the optometrist noticed the Kayser-Fleischer rings (copper…
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Danny Chats Episode 21 features special guest Aaron Jackson. Aaron was born with Biliary Atresia which is a disease that affects the bile ducts and in 2017 he started to become ill, forcing him out of work. Then on Nov 10th 2019 Aaron ended up in ICU with 5% liver function and he doesn't remember going to hospital, he was put to sleep and woke up o…
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Danny Chats Episode 20 features special guest Jillian Best. Jillian joins us from Canada and like all transplant patients she has an incredible story to tell. Not only has Jillian had a liver transplant her mother has also had two liver transplants in her lifetime. Jillian has not let having a transplant slow her down at all, since having her opera…
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Danny Chats Episode 19 features special guest Thomas Stokes. Thomas contracted hepatitis C which caused liver damage and eventually lead to his liver developing a Cancerous tumour. Thomas then needed a Liver transplant to save his life in 2017. Thomas was a keen runner before his operation and kept up the training through his transplant process, he…
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Danny Chats Episode 18 features special guest Nick Stonehouse. Nick's liver failure came on extremely fast and unexpected during a time that was already very hard for him and his family. Luckily Nick got a transplant in time and he is able to tell me his story. During this chat we talk about writing to the donors family and Nick tells me how he has…
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Danny Chats Episode 17 features special guest Tatiana Narveaz. In this episode Tatiana tells me about how she was being treated for a cancerous tumour for 2 years with Chemo before the doctors made the discovery that the tumour was not actually cancerous. Tatiana describes this as a huge relief as it then meant she was eligible for a Liver Transpla…
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Danny Chats Episode 16 features special guest Amy Honeycutt. In this episode Amy tells me about needing a Liver Transplant at just 26 years old due having a bad reaction to medication she was on at that time. Her liver failed and she needed an urgent transplant. Luckily Amy got her transplant and she recovered well. Now 10years later she is working…
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Danny Chats Episode 15 features special guest Rhonda Rowland. In this episode Rhonda tells me about her own experience of being diagnosed with Wilson's Disease and the medication she is now on to control her copper levels. Rhonda is a board member of the Wilson's Disease Association in America so we talk a bit about that and also the great work she…
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Danny Chats Episode14 features special guest Jessica Alice. In this episode Jessica talks about having a liver transplant when she was just 7yrs old and how for many years she was living a good healthy life. Jessica was in desperate need of her transplant so her Mum did what I think any mother would do and become a living donor. Jessica tells me ho…
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Danny Chats Episode 13 features special guest Armin Muzafirovic. In this episode Armin talks to me about his experience growing up with a pacemaker and eventual needing a heart transplant. At around 17 years old Armin's heart was 3x as big as a normal heart and he was fitted with his first pacemaker. Armin tells me how he has been shocked back to l…
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Danny Chats Episode 12 features special guest Brandon Mouw. In this episode Brandon tells me about his journey with Type 1 Diabetes and how having that lead him to needing a Pancreas transplant. Brandon tells me how he was passing out 8-10 times a day before his operation and had to stop driving and give up work all this while having to find $250,0…
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Danny Chats Episode 11 features special guest Elizabeth Cassidy. In this episode Elizabeth tells me about her journey with Wilson's Disease and eventually needing a liver transplant. Like many Wilson's Disease patients Elizabeth went for many years unwell but without having the vital WD diagnosis she was told to go back to the doctors and eventuall…
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Danny Chats Episode 10 features special guest Arooj. In this episode Arooj tells me her story of having a heart transplant when she was just a child, we discuss the operation and the medication Arooj needed to take after the Op. We talk about a range of things including the pros and cons of social media and the importance of taking time for your se…
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Danny Chats Episode 9 features special guest Dr. Veronica Loy. Dr. Loy is a transplant hepatologist from America and she kindly answers some of the most common questions people have regarding the liver and liver transplants, questions like 'Does the liver regenerate'. I love the answer to this question! We also discuses how Drs train for some of th…
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Danny Chats Episode 8 features special guest Dan Gottlieb. We talk all things Wilson's Disease including diagnosis, having a raw food diet, doing sports, how Wilson's Disease can affect school and work plus loads more. Check out Dan's website here - https://www.sproga.com If you would like to join me on an episode or have any questions please feel …
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Danny Chats Episode 7 features special guest Jamie Delf. Jamie was diagnosed with a rare condition called Abernathy Syndrome which effects his cognitive function and caused tumours to develop on his liver. In this episode Jamie talks all about going through different stages of diagnosis and being miss diagnosed for a long time. He explains how tumo…
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Danny Chats Episode 6 features special guest Beth Trudeau. In this episode we talk about miss diagnosis, liver biopsy, clinical depression and recovering from a transplant. If you enjoyed or found this podcast interesting please give it a thumbs up and subscribe to the channel for future episodes. If you would like to join me on an episode or have …
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Danny Chats Episode 5 features special guest Rob Holcombe. In this episode Rob and I talk about our experience of Wilson's Disease and the medical health system in the USA. Rob also talks about his diet, relationship and a few other things. If you enjoyed the podcast or found it interesting please give it a thumbs up and subscribe to the channel fo…
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Danny Chats Episode 4 features special guest Virginia Lee. In this episode Virginia and I talk about our experience of Wilson's Disease and having a liver transplant, Virginia tells me about her life and we cover relationships, food and the current happenings (Covid-19). If you enjoyed the podcast or found it interesting please give it a thumbs up …
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Danny Chats Episode 3 features special guest Michelle El Nemnom. In this episode Michelle and I talk about our experience with Wilson's Disease and Michelle tells me about the struggle she has with getting her medication to Beirut. If you enjoyed this podcast or found it interesting please give it a thumbs up and subscribe to the channel for future…
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Danny Chats Episode 2 features special guest Heather Lindsay. In this episode Heather and I talk about our experience with Wilson's Disease, Heather opens up about her journey from diagnosis to transplant and tells me what its like 29 years later. Its great to share these stories and big thanks to Heather for joining me for a chat. If you enjoyed t…
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In this episode I am joined by Jessica Wickers from the USA. We discuss how Jessica's diagnoses came about and what treatment was needed to control her Wilson's Disease. Jessica tells us about the Zinc treatment she is currently using and there is a link here - hhttps://www.extremev.com/zinc50mg.html Discount code WDAGLUZIN If you enjoyed or found …
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In this episode of Danny Chats I talk about being diagnosis with Wilson's Disease (a rare liver condition) at 14yrs old and how my life progressed up until needing a liver transplant in 2019. After sharing my story on YouTube I had massages from other people with similar stories and this is where the idea to create Danny Chats came from. The plan i…
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