The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monhtly or quartely direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit https://retinauk.org.uk/get-involved/donate/ to sign up, or, if you prefer, call us on 01280 821442…

In this podcast, our Research Development Manager, Kate Arkell, talks to health economics researcher Rebecca Rosi from Bangor University, who is aiming to investigate which support services are available and which are most beneficial to people living with RP.

The London Marathon 2025 is fast approaching and our #TeamRetinaUK runners are well underway with their training and fundraising! In this inspiring session, our marathon runners share their personal stories, motivations, and experiences as they take on this iconic challenge to raise awareness and vital funds for retinal conditions. Hear firsthand h…

The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monhtly or quartely direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit https://retinauk.org.uk/get-involved/donate/ to sign up, or, if you prefer, call us on 01280 821442…

Join us for our next webinar which is an exploration of a community members experiences of genetic testing with input from a genetic counsellor. If you would like more information on genetic testing, you can head to our website where you will find guidance on how genetic testing may help you and your family discover more about your inherited sight …

Join Lauren as she chats with Paula McGrath, Deputy CEO of Retina UK, about the 2025 Sight Loss Survey - why it matters, how your voice can drive real change, and how you can take part. Every three years, we carry out this survey to ensure our work continues to meet the needs of our community. Your voice matters, and we need your input to shape the…

This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2025 (Issue 185). You can download a copy in PDF and Word format on the Retina UK website: ⁠⁠⁠⁠RetinaUK.org.uk/resources⁠⁠⁠⁠. Contents in this edition are as follows: Tell us about you – Tina Garvey You can influence positive change A golden opportunity for your workplace …

The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monhtly or quartely direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit https://retinauk.org.uk/get-involved/donate/ to sign up, or, if you prefer, call us on 01280 821442…

At Retina UK, we believe that together, we can make a real difference in the lives of those affected by retinal conditions. That’s why we’re inviting you listen to our webinar, "Together We Can: Ways You Can Get Involved!" – your guide to exciting fundraising opportunities in 2025. Whether you’re a seasoned fundraiser or new to supporting us, this …

In this podcast we talk to Dr Jasleen Jolly, Associate Professor at Jolly Vision Science and Honorary fellow at Melbourne University. We are also joined by Yvette Chivers, Helpline Coordinator at Retina UK, who is living with Retinitis Pigmentosa (RP) and experiences CBS. Charles Bonnet Syndrome is phenomenon where some people with sight loss exper…

We are joined today by Tina Garvey, Chief Executive Officer at Retina UK. In this episode we reflect on the year 2024, taking acloser look at some of the most significant milestones and achievements for Retina UK, as well as the challenges we faced. We also explore the lasting impact Retina UK has had on the community, and look ahead to the excitin…

We’re excited to announce that Mark Baxter, our Information and Support Coordinator, will be sharing his experience of his holiday to Las Vegas, where he attended the CES 2025! CES is the world’s leading tech event, showcasing the latest innovations that could transform the lives of people with vision impairments. Hosted by Matthew Carr, Mark will …

The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www.RetinaUK.org.uk/regular-giving/ to sign up, or, if you prefer, call us on 01280 821334.…

Joining us for an "Ask the Expert" session is Dr Roly Megaw who is currently supervising a Retina UK/Macular Society PHD studentship and has received other Retina UK Research funding in the past.Dr. Megaw, answers your burning questions on inherited retinal conditions, the latest research, and much more. Whether you're living with a retinal conditi…

Chris and Dianne’s #Strictly journey has been incredible to watch. We chat with Alan and Lucille who are both blind. They have both been dancing for a number of years. Find out more about why they enjoy it. How they manage to dance with low or no vision and what their thoughts about Chris and Dianne’s chances in the final this weekend.…

The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www.RetinaUK.org.uk/regular-giving/ to sign up, or, if you prefer, call us on 01280 821334.…

This is the audio edition of the Retina UK Newsletter, Look Forward - Winter 2024 (Issue 184). You can download a copy in PDF and Word format on the Retina UK website: ⁠⁠⁠RetinaUK.org.uk/resources⁠⁠⁠. Contents in this edition are as follows: A landmark anniversary on the horizon (Tina Garvey) Time for learning and connecting Join our Gene Team this…

Hear our innovative research grantees discuss their projects and the exciting progress they are making, and see how your gift can make a real impact this Big Give. Our panel includesProfessor Majlinda Lako:Professor Majlinda Lako is the co-director of regenerative medicine stem cells and transplantation at Newcastle University. Professor Lako is a …

Join us in this exciting episode of the Retina UK Podcast as we introduce our new chair, Kathy Evans. With a wealth of experience and a passion for supporting those affected by retinal conditions, tune in to learn more about her background, her commitment to advocacy, and the innovative initiatives on the horizon for Retina UK.…

Join our Senior Fundraising Manager, James Clarke, as he chats to three wonderful volunteers about what they got up to on Thursday 10 October, our very first Retina UK Day. From cake sales, to quiz nights to even radio shows, Retina UK day was an incredible day. Thank you to all that took part.

The latest e-Newsletter from Retina UK. If you would prefer to receive this content by email, please subscribe via our website: https://retinauk.org.uk/get-involved/mailing-list/. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan eff…

This Impact Report is available in accessible PDF and plain text on the Retina UK website: RetinaUK.org.uk/resources.

Join us for an inspiring webinar where four artists share their creative passions and journey with sight loss. In this session, you’ll hear from four artists: Tina, our gifted Christmas card designer, will share her journey of creating intricate and beautiful designs. Adrian Paternoster, a skilled artist, will offer insights into his craft, where h…

Professor Graeme Black, Chloe Brotherton, GabrielVelichkova, Dr Panagiotis Sergouniotis, Kate Arkell (Retina UK)

An overview of the latest promising research.Professor Graeme Black

Our three new PhD student grantees, funded by donations, will share their findings. Chloe Brotherton, Hassina Zeriri, Gabriel Velichkova, Kate Arkell (Retina UK)

Our panel of lived experience volunteers and service usersexplain the positive impact peer-to-peer support has had on their lives. Paula McGrath (Retina UK) leads a panel session

How this new guide and Retina UK can help you to access information, support and advice to helpyou live your best life. Helen Doyle (RNIB), Denise Rawden (Retina UK), BhaviniMakwana (BAME Vision)

Practical advice on how you can offer inclusive services for people with inherited sight loss. Stephen Kill, Rebecca Lunness & Joanne Kennedy (SeeAbility), Terri Balon (RNIB), Bhavini Makwana (BAME Vision)

Exploring the outcomes of an in- depth study on the impact of retinitis pigmentosa (RP) on patients and family members. Matias Segovia (Oxford Eye Hospital), Kate Arkell (Retina UK)

Our panel of lived experience volunteers and service users explain the positive impact peer-to-peer support has had on their lives.Paula McGrath (Retina UK) leads a panel session

How we can enable families to get the information, support and advice they need to live their best lives at all stages of their sight loss journey. Helen Doyle (RNIB), Denise Rawden (Retina UK), Bhavini Makwana (BAME Vision)

This leaflet is available in audio, PDF and Word formats. If you would like to access the leaflet in one of the other formats, please visit ⁠RetinaUK.org.uk/resource/profs-leaflet/

The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www.RetinaUK.org.uk/regular-giving/ to sign up, or, if your prefer, call us on 01208 821334.…

If you would prefer to download a copy of the programme in PDF or Word (plain text), please visit: ⁠RetinaUK.org.uk/event/annual-conference/

If you would prefer to download a copy of the programme in PDF or Word (plain text), please visit: RetinaUK.org.uk/event/professionals-conference/

This is the audio edition of the Retina UK Newsletter, Look Forward - Summer 2024 (Issue 183). You can download a copy in PDF and Word format on the Retina UK website: ⁠⁠⁠RetinaUK.org.uk/resources⁠⁠⁠. Contents in this edition are as follows: TRACK 2: Our Annual Conference is heading north (Tina Garvey) TRACK 3: Our ever-popular Annual Conference he…

Join Research Intern Aysha in conversation with Research Development Manager Kate and Communications Manager Jane as they take us through the history of the charity, why we are called Retina UK and what conditions we support. Don't miss out on this informative podcast!

Hosted by Retina UK’s James Clarke and Aysha Ahmed, this session is in conversation with 3 young adults, who have turned challenges into triumphs. Listen to their gripping journeys and exciting plans for the future. Discover the power of peer support and connect with a community that understands. Guest Speakers: Karolina Pakenaite: An inspiring adv…

Listen to Matthew Carr, Special Projects Lead at Retina UK as we discuss accessible voting during the general election. Please find resources mentioned in this episode below: Call the Helpline: +44 0300 111 4000 Email the Helpline: [email protected] RNIB: https://www.rnib.org.uk/get-involved/support-a-campaign/voting-and-elections-what-you-n…

The latest e-Newsletter from Retina UK. Please consider donating to Retina UK through a monthly or quarterly direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www.RetinaUK.org.uk/regular-giving/ to sign up, or, if your prefer, call us on 01208 821334.…

During Loneliness Awareness Week, we're hosting a special webinar to address the challenges faced by individuals with sight loss when it comes to travel and mobility. Research by RNIB has highlighted the critical need for enabling greater fulfilment and freedom through travel, with a significant impact on quality of life. According to their finding…

Did you know May is National Walking Month? As part of Mental Health Awareness Week, we're exploring the power of movement. As the weather turns warmer and we are happier venturing out a little more, we look at the activities that some of our communities are getting involved with. Getting out in the fresh air is good for sole, in fact 'movement' is…

Have some questions about the Big Give Kind2Mind campaign? Listen to our Head of Fundraising Jo, as she discusses more about the Big Give. From how to donate to why this campaign is a game changer for us.

The latest e-Newsletter from Retain UK. Please consider donating to Retina UK through a monthly or quartely direct debit if you can. Regular donations provide a reliable source of income to help us to plan effectively for the future. Visit www.RetinaUK.org.uk/regular-giving to sign up, or, if you prefer, call us on 01280 821334.…

Join Research Development Manager, Kate Arkell as she speaks to our latest research grantees about their projects. PhD studentship: Dr Matteo Rizzi, UCL Institute of Ophthalmology Investigating photopsia and photophobia in Stargardt disease. PhD studentship: Chloe Brotherton, Edinburgh University Understanding why different RPGR gene mutations can …

The latest e-Newsletter from Retina UK. If you would prefer to receive this content by email, please subscribe via our website: Join our mailing list - Retina UK

Join the fun and support a great cause. Our Weekly Lottery has now arrived. This podcast aims to answer any questions you may have and encourage you to take part. RetinaUK.org.uk/lottery

This webinar was broadcast live on Thursday 21 March 2024. It is available in video format on our YouTube channel: https://youtu.be/oF5DP6XUsXk Have you ever been tempted to take part in the TCS London Marathon? In 2022 the TCS London Marathon raised £58.3 million for charity so it’s a vital source of income.Our Events and Community Fundraising Man…

This is the audio edition of the Retina UK Newsletter, Look Forward - Spring 2024 (Issue 182). You can download a copy in PDF and Word format on the Retina UK website: ⁠⁠RetinaUK.org.uk/resources⁠⁠. The short piano music at the beginning of thisrecording is a tribute to Norman Pampel FCA for his much acclaimed role as honorary treasurer of the Brit…