Podcast by Rare Candy
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RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.
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Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.
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We’re bringing you a slice of our lives through humor, tears, drama, games & pop culture, where trying to stay on topic is only half the fun! Join us!
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Parenting tools and life hacks for raising a child with a rare diagnosis. Let’s get to the meat of it!
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Welcome to the Dream Rare Podcast! An audio experience aiming to lift you up, make you laugh & help you get healthier all while bringing you some of the best news analysis on Earth.
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Dive deep into the fascinating world of rare books with Rare Book Chat. Hosted by Michael DiRuggiero and Jeremy O'Connor, the co-founders of The Manhattan Rare Book Company, this twice-weekly podcast explores the unique and often valuable items that fill the world of rare books, manuscripts, letters, photographs, archives, and more. From historical documents to literary first editions, we'll discuss the stories behind these one-of-a-kind treasures. Join us as we explore the intricacies of th ...
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Fighting sarcoidosis as well as other rare diseases.
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Hosted by Dan Cleary, RFR is a comedy podcast that aims to be just that; in rare form. Sex, race, religion, conspiracy, controversy... nothing is off limits! The faint of heart need not apply. Follow us on Instagram & Twitter: @RareFormRadio - subscribe wherever you get your podcasts - Give us a rating & review if you'd be so kind.
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Casey + Cassandra are a pair of best friends with the same rare disease. Their goal is simple: sharing their lives to showcase the beauty and normalcy in disability, while having fun together. They’ll also touch on accessibility, friendships, style, and everything in between as they live their best, rare, lives! For show notes, go to rarewithflair.com
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This podcast is about rare and wonderful creatures that are at risk of disappearing and the amazing people working hard to save them! Have you ever wanted to know why they call the Loggerhead Shrike the Butcher Bird? Have you wondered where have all the bats gone? Or asked yourself what is being done to protect the creatures that can’t stand up for themselves? Well this is the podcast for you!
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Welcome to the Rare Cuts Media Society! A Book Club Style show where we dive into Movies, TV, Books, Music, and more. Each month one of us will choose a new piece of media to dive into and discuss. Make sure you watch, listen, and read along with us each month so you will be ready for our discussion. Warning: There will be Spoilers!
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The Thomas Fisher Rare Book Library is the largest rare book library in Canada, holding over 800,000 books and 6,000 linear metres of manuscript material.
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Young women have been growing up with an indoctrination of what womanhood is and what it should be. They've been taught everything that is in direct opposition to the Word of God. Young women who want to be different from the world are rare but they are real. Audrey Broggi will often be joined by her daughter and her daughters-in-law who desire to be discerning in a day when everything seems to go against God's design.
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This is the real, raw, and all the feels of loving a child with disabilities. Episodes feature parent-guests, professionals, and solo episodes with host Madeline Cheney. Their authentic conversations don’t shy away from the strong and mixed emotions that often accompany medically-complex parenting. Parents listen in to feel seen, validated, and receive much-needed solidarity. Professionals working with disabled people listen in to better understand what is often going on under the surface fo ...
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Welcome to P4A Let’s Talk Rare, a monthly podcast highlighting the most important developments in the world of rare diseases orphan drug, cell and gene therapy, hosted by Georgie Rack and Owen Bryant of Partners For Access. To find out more about Partners For Access and our commitment to sustainable orphan drug access for patients with high unmet need, visit partners4access.com
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Formerly Nutrition Equity, rare connection is an extension of the podcast to include all 10,000 rare conditions and not just those covered by the Medical Nutrition Equity Act. Some of the conditions may be the same, but I am trying to turn this into a learning experience for those in the medical feild, policy leaders, and those who are just interested in hearing about rare conditions and patient stories. Rare conditions are called zebras hence the zebra striped ribbon. More common conditions ...
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Escape The World Thru MusiQ.
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Wie denkt dat klimaatproblemen, feminisme of superrijken typisch dingen van nu zijn, heeft het mis. De Romeinen hadden er ook mee te maken. In de podcast Rare Jongens vertelt historicus Olivier Hekster (Radboud Universiteit) hoe de Romeinen omgingen met dingen waar we ook nu mee te maken hebben. Samen met Merijn Doggen (hoofdredacteur Universiteit van Nederland) bekijkt hij wekelijks onze tijd door de bril van de Romeinen. Met dank aan de Letteren Faculteit van de Radboud Universiteit
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Welcome to the new Rare Kidney Disease Show part of the RKD Scientific Network sponsored by Travere Therapeutics. The Rare Kidney Disease Show is your primary source for cutting-edge insights, expert perspectives, and pivotal updates in nephrology. Led by our panel of experts, explore the advances in glomerular nephropathies through compelling conversations, challenging case studies, and discussions tackling hot topics. Join us as we strive to provide you with the ultimate resource to suppor ...
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I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because ea ...
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Conversations started by The Whitworth Group
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Patient Empowerment Program: A Rare Disease Podcast
n-Lorem Foundation (Dr. Stan Crooke, Amy Williford, Kim Butler, Andrew Serrano, Jon Magnuson, and Kira Dineen)
Join the nano-rare disease community! Interviews features leading physicians, scientists, biotech experts, and patient advocates. Lessons teach core concepts about drugs. Our host Dr. Crooke has led the creation of antisense technology and his foundation, n-Lorem, is using this powerful technology to discover, develop, and provide personalized experimental antisense oligonucleotide medicines to nano-rare patients for free, for life. n-Lorem is a non-profit organization established to apply t ...
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Facts are facts if you would like to share your story or be apart of the podcast email me at [email protected]
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Podcast by rarebirdlit
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Funny in Spanish Cover art photo provided by Nahil Naseer on Unsplash: https://unsplash.com/@nahilnaseer
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Welcome to the VeryRarePodcast
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New Simplicity Channel. Robert Bonet's Music No Published
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Every beginning carries within it the seed of its own destruction.
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Are you ready to transform your real estate business? The RARE Agent Show is your ultimate guide to closing more deals, building wealth, and thriving as a real estate professional. Hosted by Dylan Tanaka, a multi-award-winning Realtor and coach, this podcast is where top-performing agents share their secrets and strategies to help you achieve consistent closings without the stress. Each episode delivers actionable insights through two dynamic formats: •Exclusive Agent Interviews: Dive deep w ...
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Continuous mixes of deep house, 90s hip hop and other groovy goodness...
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Ever wonder what makes people take the leap and follow their dreams? That's what RareErth Podcast is all about. I sit down with folks who've turned their passions into careers, asking them the tough questions we all face. How'd they find the courage to start? What keeps them going? Whether it's artists, business owners, or creative thinkers, I'm chatting with people who've taken risks to do what they love. If you're looking for a little inspiration or just enjoy a good story, tune in. Learn ...
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Funny and........ N O T H I N G
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Karena menulis dan merekamnya dengan suara adalah cara mengabadikan sebuah kenangan yang telah usai. Support this podcast: https://podcasters.spotify.com/pod/show/heirare/support
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Two girls dropping gems in all areas of life! From your social to your personal life hopefully what we talk about can help you!
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Matt Condon and Jonathan Mann explore what it means to own things on the blockchain and beyond.
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"Medium Rare is a brand-new talk show podcast from the minds behind G33k P0p. Join us every fortnight for discussions of topics that we think are interesting, regardless of if it's what you want to hear"
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The Rare Disorder Podcast is a podcast created by Shivani Vyas, a high school senior, young changemaker, and rare disease advocate, dedicated to spreading awareness for rare diseases. This podcast is divided into 2 main series. In the "Meet a Fighter," Shivani interviews patients and those affected by rare diseases allowing them to share their inspirational stories. In "Meet An Expert/Partner," Shivani interviews public health experts, rare disease organization leaders, rare advocacy leaders ...
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Rare Treasures is a podcast all about rare conditions and disabilities. Each episode will focus on a rare disability or condition. We will gather information and statistics as well as interview people affected by the condition.
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This is a podcast tutorial
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A series of eclectic mixes from my vinyl record collection- check for regular updates and downloadable classics.
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Stories and Testimonies about 22Q11.2 and all rare and not so rare disorders and causes
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The home of Schwarzenegger Watch Together, the podcast that chronologically critiques the career of actor, bodybuilder, politician and American hero Arnold Schwarzenegger, and other projects
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A platform that discuss current Topics as well as promote Upcoming Underground Artist And the #1 Goal is to Appreciate the “ REAL” because it’s Rare
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Forty Fivan is a San Francisco based DJ & record collector, highly regarded for his creative mixes, and deep collection of rare Brazilian vinyl.
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Entertainment jokes life real life
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This podcast covers everything from sex, love, lifestyle,career,health, beauty fashion and relationships with other people and more importantly with yourself .
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A quick chat about Valentine's Day gifts from the 19th century -- and the all important question of whether love was even possible in the olden days. Plus, a little more (but not much!)Bởi Jeremy O'Connor and Michael DiRuggiero
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Hemochromatosis With Michael from Guatemala
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2:04:22Send us a text Hereditary Hemochromatosis (HHC) is a genetic condition that causes the body to absorb too much iron, leading to serious health complications if left untreated. Many people go undiagnosed for years, mistaking symptoms for other conditions. In this episode of Rare Chef, I sit down with Michael J. Tallon, an author, traveler, and rare …
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#335 - Live dolphin lyrics. Dan thinks the winter is cold. Time to work! Different pant styles. Wedding talk. Stuff from the 90s. Padiddles & punch buggies.
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180: Does Disability Parenting Ever Get Easier? Survival Mode, Burnout Mode, and Beyond w/ Erica Stearns and Alyssa Nutile
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59:30The age old question: Does this life ever get easier? And if so, when? Just as you might expect, the answer isn’t quite cut and dry, but in this episode, I’m joined by Erica Stearns and Alyssa Nutile to sort through this complex question. Using their Caregiver Continuum framework, they offer a way for you to orient yourself and gain footing as a di…
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Movie - Hell Comes to Frogtown (1988)
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1:10:00Part 1 of Rowdy Roddy Piper In this episode of Rare Cuts Media Society, hosts Andrew, Eric, Mike, and Rob, dive into the 1988 cult classic "Hell Comes to Frogtown," featuring the legendary WWF/WWE superstar Rowdy Roddy Piper in one of his iconic film roles. Exploring the intersection of wrestling and cinema, this installment kicks off a new arc ded…
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Fugazi w/ J David Osborne and Kelby Losack
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2:23:10The Agitator boys are back for another horse session talking about many important issues. Stay tuned til the end for a special production of Kelby Losack's short story "Chicken and Waffles" ready by Glen Rockney and produced by Nich Farrell. Short story also available on youtube https://youtu.be/CtxqyOFpwqMListen to Agitator https://www.patreon.com…
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TWO EPISODES! Anna Luna Tasked To Lead JFK, Epstein, 9/11 & UFO “Federal Secrets” Declassification, Super Bowl Halftime Opinion, Ron Paul Suggested For Fed Audit & Valentine's Day Rant!
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1:48:37First podcast is at (00:00) about the slow release of JFK Files, Epstein, 9/11, Covid Origin. Second podcast (49:28) was my Super Bowl Half Time reaction, "Galentine's Day" bit & Ron Paul to help audit Fed possibly?Bởi An0maly
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157: An Interview With Andrea Renzi, a Patient Advocate for Women Affected by HDFN
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12:15Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Andrea Renzi, a New Hampshire mother and patient advocate whose family has been affected by hemolytic disease of the fetus and newborn (HDFN).Bởi Rare Care Podcast
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This week on the podcast, you will hear from my granddaughter, Grace. I asked her what her walk with God is like as a 13-year-old seventh grader. I asked how her relationship with God impacts her life as a daughter, a sibling, a cousin… We talked about how she studies the Bible and how she would encourage someone her age to stay strong in the Lord.…
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Jolie Lizana is a pulmonary hypertension (PH) survivor and advocate. Despite enduring severe heart failure and lengthy hospitalizations, Jolie credits her medical background, determination, and the love for her child for pushing her to survive and adapt. Jolie now raises awareness through her website, www.breathtakingawareness.com, and has contribu…
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From Cold Calls to YouTube Clicks: Jay Jones on Real Estate Agent Success | RARE Agent Show
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40:49🎙️ From Cold Calls to YouTube Clicks: Jay Jones on Real Estate Agent Success In this episode of The RARE Agent Show, Dylan Tanaka sits down with Jay Jones, a real estate agent, investor, and YouTube creator with over 10,000 subscribers. Jay shares his journey from cold calling to leveraging YouTube to generate leads and build authentic client relat…
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Case 8 of the exhibition De cerebro: An Exhibition on the Human Brain.Bởi Thomas Fisher Rare Book Library
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Sloane was born with a KIF1A mutation and is a special case at n-Lorem—she was the first patient to receive a medicine originally designed for someone else. Her mother, Megan, and grandfather, Tom, join the Patient Empowerment Program to share her journey and provide an update on how she’s doing six months after treatment. On This Episode We Discus…
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Send us a text Love can be not only beautiful but EXTREMELY complicated! Join us as we navigate through our own experiences and opinions on matters of the heart and relationships!Bởi Rare Frequency
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112. a grocery delivery shopper yelled at cass??
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56:02Case + Cass at Chelsea Market in NYC, 2024Bởi Casey Greer and Cassandra Mendez
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Dive into P4A's annual appraisal of the year ahead. In this episode of Let's Talk Rare we examine the most important trends as identified and voted for by the P4A team. Ranging from Donald Trump's tariff impact on EU's ability to price orphan drugs to the change of mindset in HTA bodies to include patient experience data in their decision making ca…
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A Heart Attack that Led to a Rare Disease Diagnosis
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30:13When Patty Keating had her thyroid removed, she experienced what she described as a “buzzing in her face,” had trouble sleeping, and felt anxious. Her symptoms grew worse and she had trouble climbing stairs. Then, six months later, her heart started racing, and her husband rushed her to the hospital, where tests showed she was having a heart attack…
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014: Daily Safety Made Simple: 5 Key Safeguards for Home
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21:33Essential Safeguards and Hacks for Parents of Children with Rare Diagnoses In this episode of Rare Meat for Moms, host Meghan Weaver shares practical tips for keeping children safe at home. Meghan details five key safeguards: (1) a freezer door alarm to prevent food spoilage, (2) a secondary lock on the main entrance to control access, (3) a Ring s…
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Episode 131| A well-designed and successfully conducted clinical trial with very clear negative results is the second-best outcome in drug development” to better reflect the overall message?
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57:06Despite high hopes and promise from the drug Namilumab, Kinevant Sciences is reporting that the drug was not effective in treating Sarcoidosis. A well executed clinical trail showed that the drug simply didn't make a difference for sarcoidosis patients. In this episode of the FSR Sarc Fighter Podcast, two of the leaders at Kinevant join me to talk …
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