got jokes? no filter, thoughts into words!
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Join Sean on a journey of awareness, empowerment, and real talk about life with Tourette’s Syndrome and autism. Inspired by my memoir, Beyond Labels: A Journey with Tourette’s Syndrome and Autism, this podcast explores the highs and lows of living with these conditions. Each episode is a space to share experiences, support others facing similar challenges, and offer insights to parents and carers. Whether you’re navigating these diagnoses personally, as a family member, or simply want to lea ...
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Hai I’m Daniella. I’ve had Tourette’s syndrome since I was about 6 or 7 years old. This podcast is going to be about my experiences with Tourette’s and my way of educating those who do and don’t have it. I want to give confidence to those it’s Tourette’s and a comfort that there is someone talking about it and relating to them. Confidence is key! Let’s go on a journey to crush our demons and let our tics shine.
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Authentic conversations about Tourette Syndrome, produced by an insider who isn't interested in the ol' one-dimensional take on what it's like to have TS. On each episode, host Ben Brown talks with a fellow Touretter about his or her history, tics, social interactions and daily management of Tourette's -- whether by masking it, owning it, medicating it, or something altogether different. It's engaging, funny, heavy, real. Get ready to meet people who blow away the standard portrayal.
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An insight into adulthood with tourette syndrome. What is it? Who lives with it? Can you be successful with it? These plus many more topics will be covered. If you have any questions you want answered or want to be involved please send me an e-mail room17studios@ruffroadmedia.com.au
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Episode 7: Taming the Ticks: My Journey to Control and Confidence
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In this episode, I open up about my personal experience with verbal and physical tics, sharing the challenges I’ve faced and the strategies I’ve developed to manage them. Through years of practice and perseverance, I’ve reached a point where my tics no longer hold me back. Whether you’re living with Tourette’s Syndrome or supporting someone who is,…
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Episode 6: Tinsel, Lights, and Sensory Delights: A Christmas for Every Child
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In this episode of Beyond Labels, we explore how to create a sensory-rich Christmas experience that engages all the senses and brings magic to the holiday season. Whether it’s decorating a personal Christmas tree, making cookies, or immersing in the sights and sounds of the season, these simple yet powerful activities can help children with autism …
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Episode 5: My Diagnosis: Facing Tourette's, Autism, and Family Challenges
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In this episode of Beyond Labels, I open up about my journey to diagnosis. I discuss how, at age 7, medical professionals began observing my symptoms, and the challenges I faced when my father refused to continue my therapy and support, hoping instead that I’d be a 'normal' child. Join me as I share this deeply personal story of resilience and find…
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Episode 4: From Visible Tics to Inner Peace: Techniques That Transformed My Life
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In the latest episode of my podcast, Beyond Labels, I open up about my personal journey with Tourette's Syndrome and the techniques I've learned to manage my symptoms. I talk about how I used to have very noticeable physical and verbal tics that caused joint and muscle pain, and the challenges that came with them. Over time, I discovered ways to re…
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Episode 3: Building Bonds Through Routine
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In Episode 3 of Beyond Labels, we explore the importance of routines for children with autism and how structured routines can create a sense of security, prevent meltdowns, and strengthen relationships between children and their parents or caregivers. I share my own personal routine and offer practical tips to help parents and caregivers work along…
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Episode 2: Finding Comfort in Uncomfortable Situations: Dining Out with Tourette’s and Autism
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In this episode, I dive into the challenges of social anxiety, particularly around dining out as a child with Tourette’s Syndrome. I share my personal experiences of feeling uncomfortable around strangers, fearing judgment, and the relief that a booth can provide for families seeking a secure space to enjoy a meal together. I also discuss how resta…
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Episode 1: Against the Odds: Why I Wrote Beyond Labels
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Almost Gave Up: The Journey to Writing Beyond Labels In this first episode, I share the story behind Beyond Labels: A Journey with Tourette's Syndrome and Autism and why I felt compelled to write it. The journey wasn’t easy, and I almost gave up at one point. Join me as I explore the ups and downs, the moments that challenged me, and the drive that…
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Season 9 - Episode 7 - Bullying, No Way! (with Jaylen Arnold)
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In this episode, Jhonelle sits down and speaks with our guest, Jaylen Arnold. Arnold is the founder of Jaylen's Challenge, a non-profit that spreads awareness on anti-bullying. Jhonelle and Jaylen speak about their years of friendship, Jaylen's story of how he started Jaylen's Challenge when he was getting bullied for having Tourette Syndrome, the …
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Season 9 - Episode 6 - I Have Tourette Syndrome, Is That a Problem?
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This week, Britney and Jhonelle sit down and speak with our guest, Kel Hannum. In this episode, we talk about his experience serving in the U.S. Airforce for 23 years as a civil engineer officer, others' responses to learning he had TS while serving, his experience with PTSD, parallels between tic disorders and PTSD, being diagnosed later in life, …
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Season 9 - Episode 5 - Behind Closed Doors, I've Got This
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This week, Britney and Jhonelle have a special guest: Colleen! In this episode, we talk about OCD, how it's stigmatized just like Tourette Syndrome is, and the real debilitating toll it can take on a person. If you want to learn more, head over to the Tourette Association's YouTube channel to watch "Living With Tourette Syndrome & OCD: A Community …
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Season 9 - Episode 4 - Same Tic, Different Font
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In this episode, Jhonelle and Britney take a lighthearted approach and talks about weird and humorous things their tics have made them do. They also talk about the importance of being able to laugh them off from time to time and how laughing with a person who tics instead of at them are two different and important distinctions. For more information…
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Season 9 - Episode 3 - The Great Advocacy Journey
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In this episode, Britney and Jhonelle share their stories on how they began advocating about Tourette Syndrome, the ups and downs that come with advocacy, the Tourette Association's National Conference in June, and advice and tips for what to be prepared for if you're interested in advocating. For more information and resources regarding Tourette S…
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Season 9 - Episode 2 - Weird Things With Tics
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In this episode, Britney Wolf and Jhonelle Bean talk about how tics affect them, some features of tic disorders, like echopraxia, tics versus stimming, imposer syndrome, and much more. For more information and resources regarding Tourette Syndrome and other tic disorders, visit the Tourette Association of America at tourette.org. Fight stigma, rais…
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Season 9 - Episode 1 - Change of Command (Britney and Jhonelle!)
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It's a whole new season of Tourette's Podcast! Ben is back at the interview mic with two very special guests who bring us a path-altering twist. On this episode, we pass the torch to your amazing new hosts from the Tourette advocacy world: Britney Wolf and Jhonelle Bean. After a bit of hello and reintroduction, Ben, Britney and Jhonelle get to the …
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S8 - Episode 16 (Finale) - The Immediate People
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It's a moving season finale episode talking with guest Allen Shoaff (a Tourette Association Rising Leader and Youth Ambassador) after highlighting the upcoming Tic Con and a dedication to a Touretter the community recently lost. A subsequent project seeks to build a top-class treatment facility for complex cases of Tourette. Thanks so much to the T…
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Back after Ben's laryngitis outage, it's a new episode, and our guest is Shelby Ally, a model and actor from Orange County, Calif., who manages a tic disorder and insomnia but has found power in self-acceptance and advocacy. Shelby, doing professionally what she loves, emphasizes the pursuit of dreams, with the acknowledgement of challenges. Plus: …
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S8 - Episode 14 - Breathing Weird
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We're back from our holiday and personal-biz break with a solid conversation Ben recorded recently with guest Sophie. This wasn't their first time talking; Sophie had involved Ben in a project she was working on regarding Tourette portrayals and the media experience. They examine that a bit before covering all sorts of life ground, as tends to happ…
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S8 - Episode 13 - Harder to Not Talk About It
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Talking with professional writer Tara Lerman about a great many things, including the vitality we can find in highlighting Tourette stories and ongoing issues the community faces. Plus: a heap of answers to the question about good/constructive activities for a young person with Tourette. https://www.taralerman.com/ Tara Lerman, 'Why We Need to Chan…
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S8 - Episode 12 - The First Syllable Has to Happen
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On this episode, a thoroughly good-vibe conversation with Raven, aka @poecrastinator on the socials. The conversation covers stigma, ticcing openly without disclosure, developing coprolalia and much more. Plus: A parent wants some ideas for activities his son can take up that might help him live with Tourette. https://www.youtube.com/@poecrastinato…
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S8 - Episode 11 - Give It a Good, Red-Hot Crack
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A very special episode today with guest Bianca Saez and guest host Kass @ticsntatts, two adult women with Tourette sharing raw experiences. Both from Australia, the voices you hear today are well-known in the community -- Kass for her many angles on neurodiversity awareness on social media, and Bianca for her popular YouTube channel and appearances…
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Stephen DiJoseph of Pennsylvania is a lifelong musician whose work connects art and Tourette Syndrome and came to the podcast's attention by way of a short film he made expressing just that -- in a really effective way. It's an art film, but comes off relatable to people with Tourettic brains, and this episode -- exploring Tourette, OCD and so on t…
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We welcome back to the podcast Amanda Talty, president and CEO of the Tourette Association of America. We talk about what TAA has been up to, the upcoming TAA gala (Nov. 10 in NYC), science and research, and more. Don't miss this one! Plus: A question from a parent about a situation at school. Tourette Gala, Nov. 10 in NYC TAA's YouTube Update on w…
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Dan was diagnosed in the 90s, when he was in first grade, forcing him to navigate Tourette when there wasn't much easy access to community. How could he explain it? Did he need to? Could he just get by with masking? Familiar questions-to-self for many with tic disorders like Tourette. Plus: A dad explains Tourette to his 5-year-old. Tourette Gala, …
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S8 - Episode 7 - In Search of that Validation
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Our guest is Erick, a trans man and lifelong Touretter who, in navigating outsider judgments, became his own boss, found success with it, and realized that you "can't waste your energy anymore worrying about the people who try and deny who you are or what you have," as he put it. The discussion covers self-acceptance, co-occuring conditions like OC…
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S8 - Episode 6 - From Zero to One
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We talk with the eloquent Tom White, who works in the space of startups, in a great conversation covering pursuit of intellectual curiosities and how to keep momentum through often serious challenges. Plus, listener questions: 1) How do Touretters get used to ticcing in public?; and 2) When is Billie Eilish going to be on the show? Tourette Gala, N…
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S8 - Episode 5 - Claiming Who We Really Are
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We start this week with some breaking news from the Tourette Association of America: a Tourette Syndrome research study from the CDC has just landed, and it concludes that the prevalence numbers for Tourette Syndrome and persistent tic disorders are double what we previously thought. One in 50 school-age children has Tourette or a persistent tic di…
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Peter Zhao -- you might know him as the great Fabulously Tourette -- takes the hosting helm for this episode featuring high school-aged guest Slayton, who has been managing Tourette in his life for about four years so far. Ben kicks us off with some quick Q&A about adults with Tourette before making way for the fantastic conversation that Peter and…
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S8 - Episode 3 - The Dunedin Sound (feat. Mads Harrop)
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Let's head to New Zealand, specifically Dunedin, home to a legendary music scene whose latest name, Mads Harrop, is our fantastic guest this week. Mads' experience with Tourette Syndrome, autism and anxiety directly informs and shapes her music, which has a great early-90s quality and lyrics you'll know how to follow. Mads just released a new EP, "…
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S8 - Episode 2 - Name Three Songs
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Season 8, Episode 2 follows last week's guest-host format with our friend Kass taking the reins in conversation with Lilly. They find quick connections in their respective Tourette experiences. Great discussions here about self evaluation and self care, imposter syndrome and dealing with later-onset tics. https://twitter.com/TicsnTatts https://www.…
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Season 8 is here. Following our usual Episode 0, we're here with Episode 1, in which Ben steps back and Britney and Aiya take the reins. Britney (author Britney Wolf, that is) leads the conversation with Aiya, who was diagnosed last year at age 16. She knows she's always experienced Tourette, but her tics really picked up (she calls it a "tic boom"…
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Season 8 is here! Via our traditional Episode 0, we kick it off with updated thoughts on popular listener questions.
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Special Episode - The Old Guard - Talking with the Late Steve Bachner
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The Tourette community lost a hero Dec. 15, someone I named on the very first episode (Season 1, Episode 0) of Tourette's Podcast. Steve Bachner was my first frame of reference for TS. Seeing him on an episode of 20/20 in the late 1980s was my first time seeing someone else with the disorder, and there he was, Steve, being followed by John Stossel …
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S7 - Episode 16 - A Much Needed Nexus
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The Season 7 finale episode. Our guest is Tourette scientist Dr. Flint Espil, who talks with us about the latest Tourette treatments and questions before saying something we weren't expecting. In a great way. Thanks so much to Gogo, Maddie, Johnelle, Tamara, Davide, Dan, Amelie, Winter, Jack, Mark, Sophia, Shamus, Saddiq, Christine, Harper, Flint, …
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S7 - Episode 15 - When We Connect the Most (with Harper Starling)
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Taking risks is ... risky. Might fail, right? You don't just suddenly decide to move from, say, the midwest to Los Angeles to try and turn your talents into a rewarding career. And, lord have mercy, having something like Tourette Syndrome and comorbids like anxiety doesn't help, does it? For pop singer Harper Starling, it did. This is, in fact, her…
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Reviewing S7 Episode 14 - Women and Tourette
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Keeping last week's episode - our analysis with tourette scientist Dr. Christine Conelea on some of the recent talk about young women and their symptoms -- in focus, this week is a referral to a response video from Tics n Tatts on YouTube. Kass, who runs the channel, adds great points. Tons left to explore with this question: has the Tourette scien…
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S7 - Episode 14 - Science Episode: Revisiting the TikTok Thing, Sex Differences
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Recall our episode a while back with the authors of scientific report examining why doctors were seeing reported swells of young women over the course of the pandemic with Tourette-looking symptoms, and how social media like TikTok -- by way of the tic-heavy videos posted by influential Tourette personalities -- might be a player. We're revisiting …
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Saddiq is a radiography student and fitness Instagrammer/TikTok-er whose energy-spending workouts serve a role for his Tourette, discussed here in addition to late diagnosis, coprolalia, creativity and the stress of travel. https://www.instagram.com/saddiqhead/ Support the show https://www.patreon.com/tourettespodcast Tourette's Podcast is made pos…
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A different kind of episode this week -- all listener questions, including some day-of zingers. Should we make this an occasional thing? An all-listener-questions episode? Contact. TAA's YouTube page Ask the Expert: Tourette and COVID-19 Vaccine Support the show https://www.patreon.com/tourettespodcast Tourette's Podcast is made possible by the Tou…
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Seamus Evans, an ambassador for the Tourette Syndrome Association of Australia, is a standup comedian, television and radio personality, and keynote speaker working in his experience with Tourette and the boundaries it seemed to set for him -- which he essentially laughed right past. Not that it was overnight-easy. Not that he didn't have the chall…
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A small preview of the good times awaiting you on Episode 11 of Season 7, out this weekend. It'll be a good one; we're checking back in with Australia. Eyes peeled!
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S7 - Replay - Exorcism (and Other Bogus Solutions)
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This is a replay of an episode from 2019 that speaks pretty well to the emails we get asking for discussion of alternative "remedies" -- and why the podcast doesn't (or does so with heavy heaps of caution). Here's the writeup that accompanied the original airing: For Episode 10 of Season 3, we've called a doctor. (Yes, one with TS.) Clay Jones, M.D…
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Tourette. Rhetoric. Tourrhetoric. We're talking on this episode with Sophia Maier, a Touretter who takes extra care and study when it comes to the shapes and tones and incisions we create with our words. This isn't just a "words matter" dialogue -- it's about really caring for the language people use and why, so loaded with implications for empathy…
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Astrophysicist Mark Giovinazzi is on the show -- a guest we're meeting almost at random. Mark, an exoplanet-hunter, sees the chaos of Tourette and the universe working nicely together. Plus: that vocal-tic feeling; and Ben has an wonderful panic attack at work. https://exoplanets.nasa.gov/ Tourette's Podcast is made possible by the Tourette Associa…
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S7 - Episode 8 - There Is Another
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Fourteen-year-old Jack Kearney, an active Touretter whose name you might've heard around the community, brings an important point -- when it comes to community, don't forget yourself. When Tourette became a focus at his school, with visiting ambassadors spreading peer education, Jack made sure to share his own story, style and perspective -- a soli…
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What an episode. Winter Tashlin is a name you might know from the Twittersphere and acceptance messaging. But hearing him speak is something else. From his accent, you’ll quite understandably assume he’s British. Many of his fellow Americans do. This -- along with his creativity, queerness, self-acceptance and other central elements -- all interact…
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S7 - Episode 6 - You Can't Overdose on Music
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Getting it done in a rural area with little to no support for Tourette Syndrome is just one of the vitals we hit with our guest this week, Amelie, a 15-year-old who lives in a small village in Ireland and depends on herself to not only live with her TS but educate peers as well -- something she's done a solid job with. Great takes from a seriously …
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S7 - Episode 5 - Ticbait (With Comedian Dan Zerin)
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Dan Zerin is here! The Iceland-based comedian and podcast host welcomes room for lighter-side talk about Tourette et al. He in fact was part of an award-winning comedy stage show about Tourette Syndrome, "My Voices Have Tourettes," which ran weekly to sold out rooms -- for years. Since the pandemic hit, it's been a podcast you'll want to bookmark i…
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BONUS: The Real Life of Oliver Sacks
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Bonus episode! If you're new to Tourette Syndrome, it's fair if you haven't heard the name Oliver Sacks before. But he's one of the most acclaimed figures in all of neuroscience -- arguably in all of medicine, and his humanization of disorders including Tourette had incalculable benefit. In May, Ben got to interview people closely involved with Sac…
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S7 - Episode 4 - Is TikTok Giving People Tourette Syndrome? (Science Episode!)
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Let's crack into a mystery. Scientists began to notice it as the pandemic revised our lives -- young people, almost all of them women, started showing up to the doctor in surprising numbers with what looked like Tourette Syndrome. Out of nowhere. No such prior symptoms. The common denominator? They'd all been watching Tourette content on the social…
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S7 - Episode 3 - Three Days Ago (with Jhonelle)
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What better way to celebrate Tourette Awareness Month (May 15-June 15) than to open up about having the disorder? For the first time, ever, we mean (to whom it applies). Just a few days before this episode's conversation took place, our guest, 26-year-old Jhonelle, spoke up for the first time publicly about her life with Tourette Syndrome. To class…
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