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The purpose of the You First podcast is to discuss the rights of individuals with disabilities, putting your rights first. Hosts Keith Casebonne and Maddie Crowley interview knowledgeable guests, account first-hand experiences, and dive into issues of national and global importance to people with disabilities. This podcast is produced by Disability Rights Florida, a not-for-profit corporation working to protect and advance the rights of Floridians with disabilities through advocacy and educa ...
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In today's episode, we are joined by two international disability advocates, Rosangela Berman Bieler and Patricia Almeida. During our conversation, we discuss the importance and impact of global disability policy and rights work, including their work with the UN and UNICEF. They also discuss how other countries compare to the US regarding disabilit…
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In this week's episode, co-hosts Keith and Maddie talk with The Partnership for Inclusive Disaster Strategies' Co-Directors Shaylin Sluzalis & Germán Parodi. The Partnership for Inclusive Disaster Strategies (The Partnership) is the only U.S. disability-led, 501(c)(3) organization that prioritizes equity, access, disability rights, disability justi…
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In this episode of You First, we talk with Jen White Johnson (she/they), a renowned artist, educator, and disability activist who uses the arts as a medium to champion the life, joy, and experiences of the disabled and neurodivergent community. Jen discusses their journey as someone diagnosed with ADHD later in life, the barriers for disabled Black…
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Two Disability Rights Florida education advocates, April Katine and Daysi Ortiz, join Keith in education planning for students with disabilities. The three discuss the importance of individual education plans (IEPs) and transition planning and offer tips on how parents can more effectively find success throughout the process. Tune in to learn about…
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In this episode of You First, hosts Keith and Maddie discuss the impact of language on disability rights and inclusion with advocates Lawrence Carter-Long, Damian Gregory, and Laura-Lee Minutello. The conversation highlights the #SayTheWord disability campaign, personal experiences with disability-related language, government services, marketing, a…
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In this bonus episode, You First Podcast host Maddie talks with 5 guests about various legal and medical precedents that have led to the division between the disability and LGBTQ+ communities. The history between the LGBTQ+ community and the disability community is often at odds with each other. Historically, LGBTQ+ identities were viewed as mental…
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In this episode, guests Ashley Shew and Mallory Kay Nelson discuss the concept of technoableism, the history of disability and technology, and the importance of involving disabled people when developing new technologies. They highlight the challenges surrounding the definition of disability, the impact of assistive technology on people with disabil…
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In this episode, co-hosts Maddie and Keith talk with Dr. Bill Bronston and Marlene Sallo about Willowbrook State School, its exposé, and its impact on the disability rights movement. The episode starts with our conversation with Dr. Bronston, a doctor who worked at Willowbrook and ultimately was vital in the lawsuit against New York State, ultimate…
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You First podcast co-hosts Keith and Maddie are joined by disability activists and legal scholars AJ Link, Jalyn Radziminski, and Haley Moss, who identify as neurodiverse and disabled. They shared their personal stories and insights about their experiences with law school, advocacy, careers, and more. The guests discussed how their unique perspecti…
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In this episode of You First, we chat with our friend Beck DeTrempe who is doing some awesome peer led community building in Florida. They founded Basically Wonderful, which is a grassroots organization run by Queer + Disabled folks in Orlando, Florida, USA. Their mission reads: Our hope is to create peer-led spaces for marginalized communities whe…
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With one of their favorite holidays just around the corner, co-hosts Maddie and Keith delve into a serious discussion on using disability as a tool for instilling fear in others, all in the name of Halloween fun. From dressing up in offensive costumes to visiting eerie museums and reopened haunted institutions, the hosts explore how disability hist…
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On today's episode, we chat with the co-hosts of The Accessible Stall podcast, Emily Ladau and Kyle Khachadurian! These two disabled podcasting stars were some of the first podcasters with disabilities when they got their start in 2016. They are both strong advocates for disability, accessibility, and the power of story-telling. They join Keith and…
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As we head back to school in a few weeks, we wanted to highlight our new Transition Toolkit. Transition is a term to describe when youth are moving into a new phase of life. Think about big transitioning moments in your life growing up: going to middle school, trying to get a job, or being able to vote. The Transition Toolkit has timely, helpful in…
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Guest Dr. Anita Marshall joins hosts Keith and Maddie to talk about her work to make STEM more accessible for students with disabilities. As someone who acquired a disability later in life, she realized how ableist and inaccessible higher education really was. Anita created the first-ever disability-accessible planetary geoscience field course and …
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A little over one year ago, Florida decided to stop participating in the Centers for Disease Control and Prevention’s (CDC’s) voluntary Youth Risk Behavior Survey (YRBS). Since 1991, Florida participated in the YRBS. It is widely given to youth across the United States to assess their well-being regarding to mental health, teen dating violence, bul…
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In honor of Pride Month, upcoming Disability Pride Month, and the opportunity to always highlight cool disabled people, let’s talk about Frida Kahlo. Many are aware of the legendary artist, Frida Kahlo: her famous artwork, impact on culture, and iconic appearance. But many people do not know that she was a bisexual disabled woman with physical disa…
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Guest Jen Deerinwater joins host Maddie Crowley to talk about the intersection of disability and Indigenous identities. Jen is a disabled Two Spirit Indigenous individual who is an award-winning journalist, organizer, and leader within the disability, Indigenous and environmental justice movements. During the conversation, they discuss paving the w…
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June 1st is the beginning of hurricane season. As Floridians know, it can be a mixed bag as to what storms we’re going to get. But hurricanes impact other states around the country, and it’s important to be prepared and safe. On the show today we’re talking with our coworker, Bryan Russell, who is the Emergency Management Coordinator at Disability …
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With our lives and world becoming more connected and reliant on the internet, what does that mean for people with disabilities? The internet can be a great way for disabled folks to connect, especially as access barriers and safety considerations keep our community apart. But, what if that online space wasn't accessible to the very folks that need …
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Welcome to Part 2 of a conversation with Heather Watkins and Dom Evans about marriage inequity, disabled relationships in the media, and disabled parenting! Please check out our show notes from part 1 for more background information and relevant links mentioned in the episode.Bởi Disability Rights Florida
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In February, we created a blog post on disability marriage inequality. We knew people would be interested in the topic, but were taken aback by the immense engagement and shock felt by our audience. Because of that, we wanted to create a podcast episode talking with disabled folks about disability marriage inequality, parenting, and more. On the sh…
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On March 4th, 2023, the world was shaken by the passing of the legendary disability rights activist and leader Judith (Judy) Heumann. She is considered “The Mother of the Disability Rights Movement” and is frankly a badass. Judy was essential to disability rights advocacy and progress. It is because of her advocacy that our organization can do the …
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Medicaid Unwinding in Florida starts on April 1, 2023. With information coming from various Florida agencies and organizations, it can be hard to get clear information about what is happening with Medicaid eligibility. The Medicaid Unwinding process can feel overwhelming, but we hope our show today will provide you with important clarifying informa…
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In this episode of You First, we chat with Alan Herbert, a Kenyan journalist, social inclusion advocate, and behavior change communications professional. He brings on a wealth of experience in inclusive media practices, leadership, and advocacy. Alan currently serves as a prime-time TV host at Signs TV Kenya and is a founding member and Chief Execu…
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Our first episode of the new year focuses on our legislative priorities for 2023. Florida's legislative session starts in March, and Disability Rights Florida has been following the conversations around what bills and topics will be featured. Many of these issues can greatly impact the disability community in Florida. That's why we're here to give …
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Let's talk about Accessible In-Person Voting in the sixth and final episode of our new series, "Your Voice, Your Vote!" It’s almost Election Day - and you have the right to vote in person with accessible options. On this episode of "Your Voice, Your Vote!" we’re grateful to have Sarah Goldman, the Director of Administration and Youth Initiatives at…
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Let's talk about Running for Office with a Disability in the fifth episode of our new series, "Your Voice, Your Vote!" On today’s episode, we’re excited to have guests Sarah Blahovec, Olivia Babis, Karolyn Campbell, and Sabrina Cohen. These four individuals have run for office as folks with disabilities, advocated for inclusive campaigning strategi…
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Let's talk about Understanding the Disability Vote in the fourth episode of our new series, "Your Voice, Your Vote!" In this two-part episode, we talk about the disability community, their access to voting, what barriers are up against the disability community’s civic involvement, what trends we see in disabled voters, and what efforts are being ma…
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Let's talk about Voting and Intersectionality in the third episode of our new series, "Your Voice, Your Vote!" In this episode, we talk to Jazlyn Gallego from Vote Riders about intersectionality and how marginalized voters are impacted in the election process. Jazlyn is Voter Riders’ Florida State Outreach Director and Florida Voter ID Coalition Co…
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Let's talk about Accessible Vote by Mail in the second episode of our new series, "Your Voice, Your Vote!" In this episode, we talk with Doug Hall and Marsha Bukala, two Floridians with disabilities who have fought for and now utilize Accessible Vote by Mail. They discuss the history of accessible elections in Florida, how they advocated for access…
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Let’s talk about disability voting laws in the first episode of our new series: "Your Voice, Your Vote"! In today's episode, we talk with Michelle Bishop, the National Disability Rights Network’s Voter Access and Engagement Manager. She has extensive academic and embodied knowledge about laws protecting disabled voters, voting accessibility, barrie…
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As we approach the 2022 Elections, we want to focus in on all things disability and voting. The disability community makes up a fourth of the population, making it a very powerful voting block! Even though this is a huge voting group, there are many structural and interpersonal barriers set up against them. These issues disincentive disabled voters…
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Since the overturning of Roe v. Wade, we’ve seen huge repercussions for people’s safety, health, access to medical care, and more. And we know that the overruling impacts people differently, depending on who you are. If you have marginalized identities, you experience more barriers to health care and, therefore, more barriers to accessing abortion …
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Today on the podcast we have guest Neil Romano, a member and former chair of the National Council on Disabilities where he is serving his second three-year term. A former Communications Director at the White House, Neil was nominated by President George W. Bush to be Assistant Secretary of Labor for Disability Employment Policy where he developed a…
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The sixth and final episode of our "Accessibility Outside the Box" series is about Research. We are excited to have Rua Mae Williams on the podcast to talk about accessible research. They are an academic researcher who studies how technology design, computing research practices, and Disability Justice interact. They touch on a variety of concepts l…
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The fifth episode of our "Accessibility Outside the Box" series is about Video Gaming. We chat with James Rath, a legally blind film director, accessibility advocate, and speaker. In his accessibility efforts, he provides video game and console accessibility reviews, acts as an accessibility consultant for video game companies, and drives the futur…
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The fourth episode of our "Accessibility Outside the Box" series is about Recreation. Today we have two guests on the podcast to talk about various aspects of recreation, and how we can make recreation more accessible for all, including people with disabilities. First, we talk with Ashley Richmond from Help Us Gather, or HUG for short, about their …
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The third episode of our "Accessibility Outside the Box" series is about Fashion. We’ve all struggled to find clothes that fit well, we feel good in, or are just right for the occasion we are going to. However, these are everyday struggles when you’re an individual with a disability. Our guest for this episode is Kathy D Woods. She is the first Afr…
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The second episode of our "Accessibility Outside the Box" series is about City Planning. We interviewed Nora Libertun, a global leading expert on urban planning and design, sustainability, and social inclusion. Her work revolves around making everything in a city more accessible, including the layout, transportation, and recreation. She spoke about…
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Welcome to the first episode of "Accessibility Outside the Box!" Today we talk about Travel and Vacationing. We spoke to Olivia Shivas and Rebecca Dubber to learn more about this topic. They host a great podcast called What’s Wrong With You? where they recorded an episode during a trip they took, recounting all the challenges they faced along the w…
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We are happy to announce our new six-episode series we call, “Accessibility Outside the Box!” Most of us are aware by now of what it means for something to be accessible: a ramp into a building for a person who uses a wheelchair, or a website that works for people who are blind and use screen reading software. This series is all about some aspects …
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We’ll be back in April with new episodes. But until then we’re releasing encore presentations of several early episodes that matter just as much today as they did when they were originally recorded. This month, we bring you our 14th episode, Accessibility in Florida Prisons. This episode was originally released on November 21, 2017, when Disability…
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We’ll be back in April with new episodes. But until then we’re releasing encore presentations of several early episodes that matter just as much today as they did when they were originally recorded. This month we bring you “The Right to Recovery.” This episode was originally released on February 21, 2017. Since then, we’ve done two more episodes on…
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We’ll be back with new episodes in April, so until then we’ll be releasing encore presentations of several early episodes that still ring true today. This month, we present our fifth episode, titled Supported Decision-Making. This episode was originally published on December 15, 2016, and supported decision-making, or SDM for short, is now going st…
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In this episode, Jordan Kuveke-Guyton, a Veteran’s Affairs Accredited Attorney with Chad Barr Law, and Ann Siegel, the Legal Director at Disability Rights Florida, discuss options available to veterans with disabilities, many of which you might not be aware of. Not only are there benefits and discounts veterans can qualify for, but there are a numb…
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In this episode of You First, we talk to Angela Muir Van Etten. Angela just published her third book, Always an Advocate, which is full of both practical advocacy advice and many interesting stories. There will always be a need for advocates and, Always an Advocate offers hope for those who are skeptical about changing the discriminatory treatment …
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October is National Disability Employment Awareness Month. In this episode of the You First podcast, we wanted to bring some awareness to a group right here in Florida that created some amazing resources to help people with disabilities find and keep quality employment. To talk much more about that are my guests: Danielle McGill, the founder of Emp…
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In Episode 23 of the You First podcast, we talked about the representation of people with disabilities in the media, how that has evolved over the years, improving in some ways, but more often still faltering with poor and inaccurate portrayals of people with disabilities in popular media. A great point that was brought up was one of the best ways …
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When you hear the word “clubhouse,” what do you think of? For somewhere between 500,000 and 1 million people with mental illness, they think of a clubhouse as a place to gather regularly to reduce isolation, gain important skills and resources, and is an integral part of recovery. My three guests today will tell us more. They are Debra Webb, Execut…
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