Episode 42: Special Guest, Jane Green (Educationalist and Adviser on Autism, EDS and HSD)

21andsensory Podcast

My guest on today's episode is Jane Green. Jane is an educationalist and adviser on Autism, Ehlers-Danlos Syndromes (EDS) and hypermobility (HSD). Jane is autistic, and is a single parent of two, one with severe medical issues and one autistic. Jane was diagnosed as autistic aged 54 and we chat a bit about autism in women and late diagnosis.

Jane has volunteered with all ages to gain experience and study for her degrees. Jane worked in all phases of education, including epilepsy and autism schools. Unfortunately, her illness worsened, and she had to retire “medically unwell” in 2015. Following this, she finally received diagnosis of Ehlers Danlos Syndromes (EDS), but sadly had no support as her illness was not officially recognised at that time. She started volunteering for the national EDS charity, but wanted to do more, so founded SEDS (Sussex Ehlers-Danlos and Hypermobility Support) in 2018.

Outside SEDS, Jane also volunteers her skills as a carer trustee for a local carers charity, and is an “expert patient” for various other committees, patient ref. groups, clinical commissioning groups, NICE advisory committees, and social care round tables. She has sat on various guidance on autism from child to adult transitions, and has overseen new co-production autistic led social care tool kits to embed the NICE capabilities.

Jane's links:

• Janes Twitter: https://twitter.com/JGjanegreen
• More about Sussex EDS Group: https://www.sussexeds.com

My 21andsensory links:

• @21andsensory on Instagram - https://www.instagram.com/21andsensory/
• @21andsensory on TikTok - https://www.tiktok.com/@21andsensory
• 21andsensory on YouTube - https://www.youtube.com/c/21andsensory
• 21andsensory Blog - https://21andsensory.wordpress.com
• @21andsensory on Twitter - https://twitter.com/21andsensory