From Photographer to Professor: With a few detours along the way

PEP Talks ISPEP

Hear how Lara Bloom became the first Associate Professor of Patient Engagement Practice and built the Ehlers Danlos Society courtesy of a chance meeting in an art gallery.

In this episode of "Pep Talk," Lara shares her journey from a career in photography to becoming a leading advocate for Ehlers-Danlos syndrome (EDS) and patient engagement. She discusses the challenges of living with EDS, the importance of patient advocacy, and her work in building the Ehlers-Danlos Society into a global organization. Lara emphasizes the need for healthcare professionals to listen to patients and incorporate lived experiences into care.

She also highlights the significance of collaboration and the role of patient engagement in improving healthcare outcomes. The conversation concludes with Lara's thoughts on maintaining a positive outlook and the importance of trusting the process.