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My Invisible Disease

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My Invisible Disease

Jenny Nicoll & Kassy Draper

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The mental, the emotional, and the spiritual side of living with chronic illness and invisible disease. Hosts, Jenny Nicoll and Kassy Draper, longtime friends and young moms share their experience while in the trenches with symptoms and side effects of chronic illness. Jenny’s wait for transplant and Kassy’s journey to diagnosis inspired the podcast where they interview guests and discuss hacks to keep their heads above water. They see you, and your own struggle with your own invisible disea ...
 
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Real Talk: Eosinophilic Diseases

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Real Talk: Eosinophilic Diseases

American Partnership for Eosinophilic Disorders

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Eosinophils are a type of white blood cell that play a role in immune responses and help fight off infections. When these cells build up and cause inflammation in the digestive system, tissues, organs, and/or bloodstream, without a known cause, it may be the result of an eosinophil-associated disease. Join the American Partnership for Eosinophilic Disorders (APFED) for a series of conversations with researchers, clinicians, patients, and other community members as we discuss practical strate ...
 
This is a podcast made by scientists for scientists, to help you save time so you can conduct better research. For a given month, we sort the abstracts of the latest primary research articles on Alzheimer's disease into separate categories. We then summarize them for you to enjoy on the bus, on your jog, or in the lab. We hope you find our podcast useful and accessible. Please complete our new feedback survey for your chance to win a gift card. You can access it at tinyurl.com/amindrsurvey. ...
 
The Academy of Neurologic Physical Therapy Degenerative Disease Special Interest Group (DDSIG) is a component of the American Physical Therapy Association. The DDSIG is comprised of physical therapists, physical therapist assistants, and students in physical therapy programs that have an interest in neurodegenerative disorders including Parkinson’s disease, multiple sclerosis, amyotropic lateral sclerosis, Huntington’s disease, and others. The DDSIG provides a forum to discuss advances in pr ...
 
Being diagnosed with Young Onset Parkinson’s Disease can cripple a person’s life beyond repair. Without your permission, P.D. attempts to define the rest of your life. This podcast is dedicated to a man's personal journey who was diagnosed in October 2019. As the disease progresses, he strives to take advantage of the mental focus that the diagnosis has provided. By adopting what he calls as a “Speak Life” mindset, Daniel struggles to shift his outlook for the future. This is incredibly diff ...
 
PeerView (PVI) is a leading provider of high-quality, innovative continuing education (CME/CE/CPE and MOC) for clinicians and their interprofessional teams. Combining evidence-based medicine and instructional expertise, PeerView activities improve the knowledge, skills, and strategies that support clinical performance and patient outcomes. PeerView makes its educational programming and expert-led presentations and symposia available through its network of popular podcast channels to support ...
 
Wednesdays at 8:00 PM ET | Visit https://lymeninjaradio.com Host: Mackay Rippey Dr. Nicola's Socials: Restore Medicine: https://restormedicine.com info@restormedicine.com 928 Fort Stockton Drive Suite 213 San Diego, CA (619) 546-4065 928 Lauren Lovejoy's Socials: Lyme Warrior: https://lymewarrior.us Facebook: @LymeWarriorUS Instagram: @lymewarriorus Twitter: @lymewarriorus Mackay's Socials: Website: www.beyondprotocols.org Website: www.thelymeacademy.com Facebook: @beyondprotocols Instagram: ...
 
PeerView (PVI) is a leading provider of high-quality, innovative continuing education (CME/CE/CPE and MOC) for clinicians and their interprofessional teams. Combining evidence-based medicine and instructional expertise, PeerView activities improve the knowledge, skills, and strategies that support clinical performance and patient outcomes. PeerView makes its educational programming and expert-led presentations and symposia available through its network of popular podcast channels to support ...
 
Join the nano-rare disease community! Interviews features leading physicians, scientists, biotech experts, and patient advocates. Lessons teach core concepts about drugs. Our host Dr. Crooke has led the creation of antisense technology and his foundation, n-Lorem, is using this powerful technology to discover, develop, and provide personalized experimental antisense oligonucleotide medicines to nano-rare patients for free, for life. n-Lorem is a non-profit organization established to apply t ...
 
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Disease Death and Doctors

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Disease Death and Doctors

The Honorable Doctor John and The less Honorable Doctor Guy

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This is a storytelling podcast that discusses the NON-chronological history of medicine (Because going in order sucks). A discussion of diseases, discoveries, and the doctors that left their mark (and sometimes scar) on the field of medicine. Things are going to get weird. Episodes released twice monthly for your auditory consumption. Music: The Road (Punk Rock Opera). Tom Podell (digital alteration of Wellcome Library historical watercolor CC by 4.0)
 
For the exhausted mom recently diagnosed with Hashimoto’s thyroiditis to the weary woman who has been managing it for years, this will provide you with your next step on your journey to whole health. Each episode will provide simple and true tips so you can take action immediately. Your whole health is made up of body, mind, spirit, diet, and environment. Changes can be made in any of these areas to create better health. Esther will help you see your path forward in a holistic manner. This p ...
 
PeerView (PVI) is a leading provider of high-quality, innovative continuing education (CME/CE/CPE and MOC) for clinicians and their interprofessional teams. Combining evidence-based medicine and instructional expertise, PeerView activities improve the knowledge, skills, and strategies that support clinical performance and patient outcomes. PeerView makes its educational programming and expert-led presentations and symposia available through its network of popular podcast channels to support ...
 
PeerView (PVI) is a leading provider of high-quality, innovative continuing education (CME/CE/CPE and MOC) for clinicians and their interprofessional teams. Combining evidence-based medicine and instructional expertise, PeerView activities improve the knowledge, skills, and strategies that support clinical performance and patient outcomes. PeerView makes its educational programming and expert-led presentations and symposia available through its network of popular podcast channels to support ...
 
Food and Therapeutic Diet Solutions for Women with Autoimmune Disease and Chronic Illness. Are you a woman with autoimmune disease or chronic illness? Are you so tired of feeling tired and going to doctor after doctor and trying the different naturopathic methods, all the different diets, and literally nothing sticking? Nothing is helping you? Autoimmune Disease and Chronic Illness are difficult to navigate and you’re often doing it on your own. Doctors can test, maybe diagnose, and medicate ...
 
No Silver Bullet is a group started by PwP for PwP, their carers, & PD Professionals, all of the firm belief that there is so much more that a PwP can do than just pop meds! We all get a different version of PD to deal with & as they say, "There is no one silver bullet to cure all!" So we hope by sharing expert’s research with you that something mentioned will help you! Please share this content VERY IMPORTANT MESSAGE:- Please be aware, we are not Doctors, Neurologists or PD Professionals, s ...
 
RMD Open is an online only Open Access journal that publishes high-quality peer-reviewed original research covering the full spectrum of musculoskeletal disorders, rheumatism and connective tissue diseases, including osteoporosis, spine and rehabilitation. Clinical and epidemiological research, basic and translational medicine, interesting clinical cases, and smaller studies that add to the literature are all considered. RMD Open is co-owned by EULAR and BMJ. http://rmdopen.bmj.com/ * The pu ...
 
Autoimmune diseases, where the body's defence systems turn on itself, are chronic and can be devastating to people's lives. Our podcasts on autoimmune conditions detail research in NDM on some of these conditions, including MS, spondyloarthritis and inflammatory bowel disease, as well as the biological mechanisms underpinning autoimmunity itself.
 
Welcome to 'My rare disease' podcast. This is a platform where I raise awareness of something that affects 1 in 15 people, rare disease. By chatting to patients, health professionals and advocates, we talk about all aspects of rare disease including relationships, mental health and much more. I cannot wait for you to hear some truly inspiring stories from some absolutely amazing people. From being diagnosed with a rare disease myself at 10 weeks old, it has given me the motivation to give ot ...
 
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show series
 
Lyme Ninja RadioLivstream on Facebook and YoutubeWednesdays at 8:00 PM ET | Visit https://lymeninjaradio.comHost: Mackay RippeyDr. Nicola's Socials:Restore Medicine: https://restormedicine.cominfo@restormedicine.com928 Fort Stockton Drive Suite 213 San Diego, CA(619) 546-4065 928Lauren Lovejoy's Socials:Lyme Warrior: https://lymewarrior.usFacebook:…
 
We’ve got a whole variety of studies in this January 2023 episode, spanning from sensory processing, to sleep, and even to depressive symptoms. Tune in to learn more about the latest in cognitive and behavioural changes in Alzheimer's disease! Sections in this episode: Sensory Processing (2:28) Sleep (7:30) Balance (14:14) Depression (17:00) Other …
 
Go online to PeerView.com/KPE860 to view the activity, download slides and practice aids, and complete the post-test to earn credit. Management of advanced/metastatic urothelial cancer has undergone a significant transformation with the addition of PD-1– and PD-L1–targeting immune checkpoint inhibitors (ICIs) to the treatment armamentarium. These a…
 
Living with chronic illness can be hard, but finding support and understanding makes all the difference. "It is one of those things that when I was first diagnosed, they were like, everyone knows someone with Ms, but I knew absolutely no one. I had no idea about the condition or that it was actually diagnosed quite young in people at all." Heather …
 
In this episode, 2 HIV experts from the Asia-Pacific region share their thoughts on some of the most important new insights from HIV treatment and prevention research over the past year. Specifically, the faculty discuss the role of newer innovations in HIV, including 2-drug oral antiretroviral therapy (ART) regimens, 2-drug long-acting injectable …
 
In this episode, Katy talks with Dr. Andrew Guccione and Dr. Andrew Pechstein about their article published in the April 2023 issue of JNPT entitled “Walking Endurance and Oxygen Uptake on Kinetics in Individuals with Parkinson Disease Following Overground Locomotor Training.” “Dr. G” and Dr. Pechstein discuss cardiorespiratory aspects of locomotor…
 
Many cleaning products contain hormone disruptors. Those environmental chemicals are toxins that can trigger Hashimoto’s. In this episode, I’ll teach you what to look out for and what to substitute. Because nobody wants to make themselves sick by cleaning! Find a transcript for this episode on my website: https://healthwithhashimotos.com/32-spring-…
 
Manish Raisinghani joins the Patient Empowerment Program to discuss how Target ALS fosters collaboration between academia and industry to research and accelerate the fight against ALS. Target ALS has funded over 50 collaborative projects. Greater than 50% of which have had an industry partner and over 60% have resulted in an ongoing drug discovery …
 
On episode #24 of the Infectious Disease Puscast, Daniel and Sara review the infectious disease literature for the previous two weeks, 3/1 – 3/22/23. Hosts: Daniel Griffin and Sara Dong Subscribe (free): Apple Podcasts, Google Podcasts, RSS, email Become a patron of Puscast! Links for this episode Re-emergence of Parechovirus: 2017-2022 national tr…
 
Your health literally depends on the health of your gut, also known as your microbiome, and Spencer Feldman shares exactly what you need to do to get it healthy. Connect with Spencer at https://remedylink.com/ Connect with me at https://www.roadtolivingwhole.com Disclaimer: The goal of this podcast is to help you take control of your health and fee…
 
SwineCast 1228 Show Notes: The Swine Disease Reporting System team features special guest Dr. Rebecca Robbins (PIC) to discuss Porcine Reproductive And Respiratory Syndrome Virus (PRRSV) L1C variant moving to US eastern states. This SwineCast episode shares the most recent report number 61, that can also be found at https://fieldepi.research.cvm.ia…
 
We are delighted to bring you Dr. Rick Helmich on the topic of "Managing stress with Parkinson's" Dr. Rick Helmich was recommended to us by Prof Bas Bloem, who considers Rick to be the leading authority in this field. Rick will be discussing stress (both acute and chronic) and the effect that this has on people with Parkinson's disease. Rick's pass…
 
Dr. Miles Carroll, the professor of emerging viruses at the Pandemic Sciences Institute at Oxford University in the United Kingdom, and Sarah Gregory discuss the influence of landscape patterns on exposure to Lassa fever virus in Guinea.Bởi CENTERS FOR DISEASE CONTROL AND PREVENTION
 
Go online to PeerView.com/KPE860 to view the activity, download slides and practice aids, and complete the post-test to earn credit. Management of advanced/metastatic urothelial cancer has undergone a significant transformation with the addition of PD-1– and PD-L1–targeting immune checkpoint inhibitors (ICIs) to the treatment armamentarium. These a…
 
Wednesdays at 8:00 PM ET | Visit: https://lymeninjaradio.comHost: Mackay RippeyDr. Nicola's Socials:Restore Medicine: https://restormedicine.cominfo@restormedicine.com928 Fort Stockton Drive Suite 213 San Diego, CA(619) 546-4065 928Lauren Lovejoy's Socials:Lyme Warrior: https://lymewarrior.usFacebook: @LymeWarriorUSInstagram: @lymewarriorusTwitter:…
 
In this episode, we’ll be covering papers that were released in January 2023 that target neuronal and synaptic protection in Alzheimer’s Disease. If you’re interested in the preclinical testing of novel therapeutics and delivery methods, this is the episode for you! Sections in this episode: Novel Therapeutics Targeting Neuroprotection (4:53) Novel…
 
In this episode, Angela Branche, MD, and Helen Y. Chu, MD, MPH, discuss the clinical presentation of respiratory syncytial virus (RSV) in adults and the importance of early detection, including: Clinical symptoms and presentation Complications, including exacerbations of cardiopulmonary diseases Use of medical resources compared with other respirat…
 
In this episode, Angela Branche, MD, and Helen Y. Chu, MD, MPH, discuss the impact of respiratory syncytial virus (RSV) and describe those at risk for severe RSV disease, including: RSV prevalence and seasonality RSV burden throughout life, including burden in older adults Comorbidities that increase the risk of RSV complications RSV transmission i…
 
In this episode, José R. Arribas, MD, and Melissa Badowski, PharmD, MPH, FIDSA, FCCP, BCIDP, BCPS, AAHIVP, discuss optimizing antiretroviral therapy (ART) for people with HIV who are treatment experienced or failing a current ART regimen, including: The use of proviral DNA genotyping for switching therapy Maintaining nucleos(t)ide reverse-transcrip…
 
We are diving in to all things neurotransmitters and synaptic signaling to kick off the January 2023 series. You'll hear about dopamine, noradrenaline, prion proteins, a new 3D cell culture model, and more, in today's episode. Enjoy! Sections in this episode: Monoamine Neurotransmitters (3:50) Glutamate (9:18) Acetylcholine (15:51) Synaptic Protein…
 
Description: Co-hosts Ryan Piansky, a graduate student and patient advocate living with eosinophilic esophagitis (EoE) and eosinophilic asthma, and Holly Knotowicz, a speech-language pathologist and feeding specialist living with EoE who serves on APFED’s Health Sciences Advisory Council talk with guest Eliana, a child living with EoE, about her ex…
 
Wednesdays at 8:00 PM ET - visit https://lymeninjaradio.comHost: Mackay RippeyDr. Nicola's Socials:Restore Medicine: https://restormedicine.cominfo@restormedicine.com928 Fort Stockton Drive Suite 213 San Diego, CA(619) 546-4065 928Lauren Lovejoy's Socials:Lyme Warrior: https://lymewarrior.usFacebook: @LymeWarriorUSInstagram: @lymewarriorusTwitter: …
 
In this episode, Darrell H. S. Tan, MD, FRCPC, PhD, and Kenric Ware, PharmD, AAHIVP, discuss considerations for HIV pre-exposure prophylaxis (PrEP) persistence, including: The PrEP continuum of care in the United States, including inequities in PrEP uptake and persistence by race CDC PrEP guidance regarding PrEP indications PrEP eligibility by regi…
 
The National Sleep Foundation published its 2023 Sleep in America Poll and I break it down today and share what YOU can do based on this information. During Sleep Awareness Week, learn to improve your health by focusing on one small change at a time. Setting a bedtime alarm and implementing a relaxing bedtime routine can pay huge dividends in your …
 
In this episode, Carolyn Chu, MD, MSc, FAAFP, AAHIVS, and Samantha Strong, PharmD, BCACP, AAHIVP, CDCES, answer questions including: Strategies to improve disparities in pre-exposure prophylaxis (PrEP) access in difficult-to-reach populations Key remaining questions related to PrEP options for cisgender women and people who inject drugs Concerns ab…
 
Host: Mackay RippeyDr. Nicola's Socials:Restore Medicine: restormedicine.cominfo@restormedicine.com928 Fort Stockton Drive Suite 213 San Diego, CA(619) 546-4065 928Lauren Lovejoy's Socials:Lyme Warrior: lymewarrior.usFacebook: @LymeWarriorUSInstagram: @lymewarriorusTwitter: @lymewarriorusMackay's Socials:Website: www.beyondprotocols.orgWebsite: www…
 
Go online to PeerView.com/PNF860 to view the activity, download slides and practice aids, and complete the post-test to earn credit. “Treatment intensification”—or the use of combination treatment strategies—has now become the standard of care for patients with metastatic hormone-sensitive prostate cancer. Shown to extend overall survival beyond si…
 
Go online to PeerView.com/FFQ860 to view the activity, download slides and practice aids, and complete the post-test to earn credit. As the number of approved treatment strategies in renal cell carcinoma (RCC) grows, there are new opportunities to provide personalized medicine to patients in a variety of settings. Multi-targeted TKIs, immune checkp…
 
Go online to PeerView.com/PNF860 to view the activity, download slides and practice aids, and complete the post-test to earn credit. “Treatment intensification”—or the use of combination treatment strategies—has now become the standard of care for patients with metastatic hormone-sensitive prostate cancer. Shown to extend overall survival beyond si…
 
Go online to PeerView.com/FFQ860 to view the activity, download slides and practice aids, and complete the post-test to earn credit. As the number of approved treatment strategies in renal cell carcinoma (RCC) grows, there are new opportunities to provide personalized medicine to patients in a variety of settings. Multi-targeted TKIs, immune checkp…
 
Did you know the air in your home is contains 2 to 5 times more environmental toxins than outdoor air, even if you live in a city? It's pretty crazy but it's true. Luckily, you don't need to invest in expensive equipment! There are simple yet effective ways to dramatically reduce environmental toxins in your home and greatly improve air quality tha…
 
Host: Mackay RippeyGuest: Nikki DiSalvoDr. Nicola's Socials:Restore Medicine: https://restormedicine.cominfo@restormedicine.com928 Fort Stockton Drive Suite 213 San Diego, CA(619) 546-4065 928Lauren Lovejoy's Socials:Lyme Warrior: https://lymewarrior.usFacebook: @LymeWarriorUSInstagram: @lymewarriorusTwitter: @lymewarriorusMackay's Socials:Website:…
 
In honor of Autoimmune Awareness Month (March,) today's episode is all about autoimmune diseases. Did you know that there are over 100 of them? Every single one has a few things in common--including things you can do to improve your health. Whether you have a diagnosis or not, you can start on your path to healing today. Questions you'll find answe…
 
Welcome our new host, Anelya, who covers 12 papers on the role of immune system and glia in Alzheimer’s disease. The first half of this episode will focus on potential targets for the treatment of Alzheimer’s disease, followed by the disease-associated inflammatory mechanisms. Part 2 will be released as a bibliography. We hope you find this episode…
 
In this episode, Maria Buti, MD, and Richard H. Davis, PA-C, address key considerations when screening, diagnosing, and treating patients with hepatitis delta virus (HDV), such as: Barriers to screening HDV screening based on patient risk factors Universal screening for all patients with positive hepatitis B surface antigen (HBsAg) Reflex testing A…
 
Dear Friend, We are thrilled to announce the launch of a new YOPN Podcast, featuring an inspiring story about two of our very own co-founders of NoSilverBullet4PD, Michel Planquart and Mark Limebear. Through this podcast, you can discover how their friendship and shared experience of living with Parkinson's disease led them to create a community of…
 
Regardless of the circumstances, life finds a way! Jurassic Park got that one right. Cells need to live and depending on the conditions they will use one of two systems that take nutrients, break them down and use that process to generate energy. That energy is needed to sustain life – hence why it is called The Energy of Life. All the order that y…
 
Ayurvedic Medicine isn't well-understood. When I googled it all I found was a bunch of herbs. It is so much more! Dr. Shivani Gupta joins me to share what Ayurvedic Medicine is, the role herbs do play in our health, how to find a practitioner, and so much more. Connect with Dr. Gupta: www.FusinaryFormulas.com www.ShivaniGupta.com https://www.Fusion…
 
Ellen brings you summaries of 8 abstracts from November 2022, all about functional connectivity and imaging in the context of Alzheimer's disease. There are a variety of brain regions covered in today's episode, including cortical regions, subcortical structures, and the hippocampus. Spanning studies in both humans and animals, this episode is sure…
 
On episode #23 of the Infectious Disease Puscast, Daniel and Sara review the infectious disease literature for the previous two weeks, 2/16 – 2/28/23. Hosts: Daniel Griffin and Sara Dong Subscribe (free): Apple Podcasts, Google Podcasts, RSS, email Become a patron of Puscast! Links for this episode Association between cytomegalovirus infection and …
 
In this episode, Latesha Elopre, MD, MSPH, discusses key considerations to barriers to PrEP uptake, including: Addressing disparities among racial and ethnic minority populations Understanding the concept of intersectionality Tackling multiple levels of intersectionality Individual (eg, self-stigma, mental health) Network (eg, access to PrEP servic…
 
After Jenny Jones is wrongly dismissed as a "whiny child" with chronic abdominal pain, she discovers she has two rare diseases, undergoes multiple surgeries, and fights for the rights of children with rare diseases to receive the necessary health care. "If you arm yourself with the information and you don't hesitate to ask questions, you don't hesi…
 
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