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Parkinson's Disease Education Podcast

Dr. Michael Hyland, DPT, CEEAA, CFPS

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Have you ever wished there was a source of information about Parkinson's Disease, and resources for persons with PD, that were concise and easy to digest? Look no further than the Parkinson's Disease Education Podcast. In this podcast we attempt to demystify the disease and to empower you to reach your true potential as a person with PD.
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Parkinsons Recovery

Parkinsons Recovery

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Parkinsons Recovery was founded in 2004 by Robert Rodgers, PhD to provide support, information and resources to persons who currently experience the symptoms of Parkinson's disease.
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Power Over Parkinson's

Power Over Parkinson's

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Subscribe for a wonderful cross section of discussions ranging from people with Parkinson's Disease to those who work in the medical, fitness, and research space. Power Over Parkinson's (POP) is a foundation supporting the use of exercise and wellness to reduce the symptoms or slow the progression of Parkinson’s Disease. To learn more visit us at poweroverpd.org
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The Michael J. Fox Foundation Parkinson's Podcast

The Michael J. Fox Foundation for Parkinson’s Research

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Subscribe for coverage and analysis of current neurology/brain research, patient and caregiver profiles, drug development strategy, pioneering nonprofit management and other topics of interest in a wide-ranging series of conversations that include the voices of those affected by Parkinson's as well as clinicians.
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The Parkinson’s Experience is a podcast hosted by a Person with Parkinson’s (PWP) and based on her daily experiences. Listen in on her journey living with the disease and how she lives her best life with humor, generosity, empathy and knowledge. Her conversations with experts and patients like you are fascinating and authentic. They cover relevant topics from DBS (Deep Brain Stimulation) to exercise to diet to medications to much more difficult subjects like personal relationships. Of the fe ...
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A diagnosis of Young Onset Parkinson's Disease can be overwhelming, as it has the potential to reshape your life. Yet, in this podcast, we witness the remarkable resilience of one man who received his diagnosis in October 2019. Through his journey, he discovers an unexpected mental focus, allowing him to navigate the progression of the disease with determination and strength. Our host, Daniel, embraces a transformative mindset known as "Speak Life," a challenging but ultimately rewarding pur ...
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Live Parkinson's: Live an Exceptional Life Diagnosed with Parkinson's at 46, Chris Kustanbauter refused to let his diagnosis dictate his future. Instead, he embarked on a journey of research and discovery, uncovering four transformative strategies that helped him thrive - not just survive - with Parkinson's. Now, in the Live Parkinson's podcast, Chris shares his story and these powerful strategies with you. Hear firsthand how to: Fuel your body and brain with optimal nutrition Harness the po ...
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This podcast is about the early onset of Parkinson's Disease. My journey thought diagnosis, treatment and clinical trails. Parkinson's progresses differently in every person diagnosed. My goal is to shed light on one of many Parkinson's journeys and help start a conversation about the disease.
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No Silver Bullet is a group started by PwP for PwP, their carers, & PD Professionals, all of the firm belief that there is so much more that a PwP can do than just pop meds! We all get a different version of PD to deal with & as they say, "There is no one silver bullet to cure all!" So we hope by sharing expert’s research with you that something mentioned will help you! Please share this content VERY IMPORTANT MESSAGE:- Please be aware, we are not Doctors, Neurologists or PD Professionals, s ...
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Lively, upbeat podcasts designed for Persons with Parkinson's Disease and those who care for them. Educational, motivating, and completely positive. Hosted by a retired physician, Dr. Christian Hageseth, who has had Parkinson's disease for over 10 years and still does not take prescription medication medication.
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Parkinson's Disease Caring Podcast provides care partners and caregivers of loved ones with Parkinson's disease with valuable information from Parkinson's disease specialists, caregivers, and patients. Timely and engaging interviews inform the care partner or caregiver to help equip them with the knowledge and confidence necessary to enjoy the caregiving years with less struggles and heartache.
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On Time: A Parkinson's Podcast

Brian Grant Foundation

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On Time is a podcast about living with Parkinson's disease (PD). People in the Parkinson's community share their candid stories of daily living with the disease. In its fifth season, host Larry Gifford leads conversations on a topic he champions: Parkinson's stigma. Larry offers his experience garnered from years of understanding stigma and speaks with Brian Grant and other guests presenting views from different perspectives. The podcast is a program of the Brian Grant Foundation. Learn more ...
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Parkinson's Empowerment

Robin Barclay, PT, CEEAA, Safe at Home Physical Therapy, PLLC, Rock Steady Boxing Victor/Geneva, Providing in home and onsite physical therapy , wellness and exercise classes in the Finger Lakes Region.

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In this podcast we hope to help to help people living with Parkinson disease remain active and maintain/maximize independence by listening to others share their Parkinson's journey, hearing from clinicians and specialists, and keeping up to date with the latest research and resources.
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A series of Podcasts featuring industry experts: Professor Bas Bloem & Professor Werner Poewe - ‘Reflections on Parkinson’s Disease' podcast, brought to you by Oruen. In this cutting edge series, we will discuss the many miracles, mysteries and myths surrounding Parkinson's Disease. For further information please visit www.oruen.com
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Teresa Jackson from Lean On Me Coaching, shares resources and strategies for thriving with Parkinson's. Join her and her guests to learn how to live your best life in spite of living with a chronic illness.Opinion Disclaimer:The views and opinions expressed in Parkinson’s Pathway Pals Tuesdays with Teresa, are those of the guests and do not necessarily reflect the official policy or position of Teresa Jackson and Parkinson’s Pathway Pals Tuesdays with Teresa. Any content provided by our gues ...
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Larry Gifford has Parkinson’s disease, and he wants to talk about it. When Life Gives You Parkinson’s chronicles Larry’s journey following diagnosis at age 45, but he knows he’s only part of the story. The podcast gives voice to the fascinating people that make up the Parkinson’s community and beyond — his family, his fellow people with Parkinson’s, care partners, advocates, researchers and healthcare providers. Through these interviews, the podcast informs and inspires others to share their ...
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Dr. Sule Tinaz, Associate Professor of Neurology at the Yale School of Medicine in the Movement Disorders Division and Clinical Neurosciences Imaging Center, joins us to talk, you guessed it, exercise! We can never hear too much information and advocacy on exercise. Why? Because it’s the only known intervention that is known to alleviate the sympto…
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Send us a Text Message. Feeling frustrated by tremors making daily tasks a struggle? You're not alone. This episode of the Live Parkinson's - Live an Exceptional Life Podcast equips you with simple and effective life hacks to manage tremors and conquer your day! Inside this episode, you'll discover: Practical strategies for mastering everyday activ…
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The decision-making process around deep brain stimulation (DBS) to treat Parkinson’s motor symptoms can be a complex and emotional journey. People often have questions about when – and whether – to have the procedure and what the experience is like, from the months of evaluation pre-surgery to surgery day to life with the device. In audio from this…
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In this episode, we delve into the role of NAD (Nicotinamide Adenine Dinucleotide) and its potential in treating Parkinson’s Disease. NAD is a vital molecule involved in cellular energy production and DNA repair, but recent research suggests it may also play a crucial role in neuro-protection. How does NAD impact Parkinson’s Disease? We’ll explore:…
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This episode kicks off our 4-part series featuring people with Parkinson’s who found one form of the arts to be helpful with managing symptoms and gaining perspective. We will explore four different art disciplines – photography, dance, writing and music. We wanted to hear directly from the person with Parkinson’s rather than an expert on the resea…
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Below are the questions I asked Jaroslov Boublik PhD, one of the researchers who formulated the Aquas, about hydrating the body. Why can’t we become better hydrated by simply drinking more water?Why do we become more dehydrated as we age?Why is a well hydrated body essential to eliminating toxins from the body?How do the following affect hydration?…
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In the latest episode of "Parkinson's and Me," Daniel delves into the use of metaphors to convey his experiences and insights in managing life with Parkinson's disease. He begins by emphasizing the importance of continuing to live meaningfully despite the diagnosis. Daniel introduces four metaphors: "Building an Ark," "Our Second Half," "Taking the…
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Send us a Text Message. Are you living with Parkinson's and struggling with balance issues? You're not alone. This episode of Live Parkinson's Live an Exceptional Life dives deep into overcoming balance challenges, a common symptom of Parkinson's disease. Join us as we explore: The different types of balance problems experienced by Parkinson's pati…
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Just over a year ago, there was a major breakthrough in Parkinson’s disease (PD) research – a tool that could detect abnormal alpha-synuclein protein in the spinal fluid of people living with PD even before onset of symptoms. This discovery is already impacting the ways scientists conduct and think about Parkinson’s research. Tune into this episode…
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In this episode, we explore the potential role of Nrf2 (Nuclear factor erythroid 2–related factor 2) as an adjunct in the treatment of Parkinson’s Disease. Nrf2 is a crucial protein that regulates the expression of antioxidant proteins and protects against oxidative damage triggered by injury and inflammation. But how does it relate to Parkinson’s …
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Send us a Text Message. Facing Parkinson's and Cognitive Decline? Don't Underestimate the Power of Optimism! Feeling forgetful or struggling to focus? Parkinson's can bring cognitive challenges alongside physical ones. But what if there was a powerful tool you could use to fight back, right now? In this episode Live Parkinson's Live an Exceptional …
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Send us a Text Message. Do you feel like your memory is not what it used to be? Are you worried about Cognitive decline due to Parkinson's. I answered yes to both of these questions! This episode of Live Parkinson's - Live an Exceptional Life dives deep into the world of essential nutrients that can boost your brainpower and support cognitive healt…
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You might be interested in stepping forward for science to play a role in the next breakthrough in Parkinson’s research, but still have questions about how to actually participate. How do you pick the right study for you? How do you balance your life logistics and your medical care considerations? What rights do you have when you participate in a s…
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Send us a Text Message. Do you struggle with restless nights and early mornings due to Parkinson's? You're not alone! Host Chris Kustanbauter of Live Parkinson's Live an Exceptional Life knows the frustration of counting sheep all night. But here's the good news: there's a natural solution! In this episode, Chris shares his personal journey with Pa…
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Last episode we spoke with a MDS and Assistant Professor at Vanderbilt University about integrative medicine. This episode is a great follow up to the previous one. This time it is student at the University of Cincinnati leading the charge to bring an integrated approach to Parkinson’s care. She formed a not-for profit organization called Parkinson…
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Send us a Text Message. Have you ever met someone who unexpectedly changed your life? In this special episode of Live an Exceptional Life with Parkinson's, host Chris Kustanbauter shares a powerful story of chance encounters that redefined his journey with Parkinson's. You'll discover: How seemingly ordinary people can have an extraordinary impact.…
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We had the pleasure of a presentation by Dr Jonathan Sackner-Bernstein, MD, on the topic of "Why I am optimistic that we might now have a Silver Bullet for Parkinson's", followed by a Q&A session of almost 50 probing questions from our audience. Dr. Jonathan Sackner-Bernstein is transforming the treatment of Parkinson’s disease (PD). First, he disc…
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Send us a Text Message. Unleash Your Inner Powerhouse: Exercise & Nutrition for Better Living with Parkinson's (Free & One-Time Episode) Feeling slowed down by Parkinson's? This episode of Live Parkinson's - Live an Exceptional Life is your key to unlocking a powerful duo for a better quality of life: Exercise and Nutrition! We delve into the scien…
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What is integrative medicine and how is it different than what we are used to which is mostly silos of care and mostly Western medicine? My guest today will offer an alternative to this, a better way to treat a patient with a condition or disease. Dr. Britt Stone, an Assistant Clinical Professor at Vanderbilt Medical Center, spent her pandemic time…
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MR-Guided Focused Ultrasound is an alternative treatment for Parkinson's disease and essential tremor. In this fascinating episode, Dr. Vamsi Chavakula, affiliated with Sharp Healthcare, looks at the pros, cons, history, and future of HIFU. Click here for more information on treating movement disorders at Sharp. For more information about the Parki…
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In this episode, we take a closer look at glutathione and its potential role as a supplement in the treatment of Parkinson's Disease. Glutathione or GSH is an anti-oxidant, as with several supplements we have discussed on the podcast. But how effective is Glutathione for Parkinson's patients? We discuss the research and more. Resources: https://www…
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Send us a Text Message. Struggling with Parkinson's movement symptoms? Tune in for a glimmer of hope! This episode of Live Parkinson's - Live an Exceptional Life dives into the exciting potential of the Mediterranean diet to improve movement function in Parkinson's disease. We explore the science behind this dietary approach and its impact on manag…
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Send us a Text Message. Unpacking the science behind coffee, tea, and their potential impact on Parkinson's disease in this special episode of Live Parkinson's Live and Exceptional Life! Join us as we navigate the ongoing debate about caffeine and Parkinson's. Is your morning cup of joe a helpful friend or a sneaky foe? We'll explore the latest res…
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In April 2010, Allison (Allie) Toepperwein experienced a tremor in her left hand while living in Austin, Texas after giving birth to her daughter. Around eight months later, in December 2010, Steven Eury noticed a tremor in his right hand while filming the birth of his son 1100 miles away in North Carolina. The following year, Steven received a dia…
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Many people living with Parkinson’s disease (PD) experience pain as a non-motor symptom. Pain can arise from stiff muscles, dystonia, nerve pain and even the disease progression itself. It’s a symptom that some find difficult to talk about, but there are options for people to find relief. In audio from this Third Thursdays webinar, listen to our ex…
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Send us a Text Message. Diagnosed with Parkinson's? You're not alone. In this episode of Live Parkinson's Live an Exceptional Life, hear a powerful story of resilience and living a fulfilling life after a Parkinson's diagnosis. Join us as we explore: Coping with the initial shock and navigating the unknown. Finding the fight within and implementing…
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In this episode, we take a closer look at creatine and its potential role as a supplement in the treatment of Parkinson's Disease. Creatine, commonly known for its use in sports and bodybuilding, has shown promise in recent studies as a neuro-protective agent. But how effective is it for Parkinson's patients? Be sure to watch on YouTube for en enha…
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What stage are you in? Do people ask you that question? If so, do you tell them? Do you even know? What are the stages and what do they mean? Frankly, I have never asked my movement disorder specialist neurologist what stage I am in. I don’t know why. We have never discussed it. However, learning and knowing more about how your doctor is tracking t…
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Send us a Text Message. Parkinson's and Nutrition: Can What You Eat Help Manage Symptoms? (#ParkinsonNutrition #EatWellLiveWell) Living with Parkinson's doesn't have to mean limitations. This episode of Live Parkinson's - Live an Exceptional Life dives deep into the surprising power of food in managing Parkinson's symptoms. We explore how what you …
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Allie Signorelli, Parkinson’s Advocate and person with young onset Parkinson’s (YOPD), shares her journey to diagnosis and how she’s positively impacting the Parkinson’s community at a national level. Allie is lending her voice through advocacy and harnessing her career experience, particularly in fundraising and event management, to serve our comm…
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Earlier this season on episode number 088 titled “the Skinny on Skin” we learned about the various skin disorders that can manifest in people with Parkinson’s. Well, on the flip side, the skin is the largest organ in our body. It must hold all kinds of secrets to our health. It turns out alpha-synuclein gets deposited in the skin of patients with s…
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In this episode, hosted by Larry and Rebecca Gifford, members of The Michael J. Fox Foundation’s Patient Council and their care partners share their honest reactions to their diagnosis — from panic and denial to sadness and loneliness. This group of men and women of different ages and backgrounds offers words of wisdom about what to consider, what …
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Send us a Text Message. Struggling with everyday tasks due to Parkinson's? Take back control and achieve "Everyday Wins" with assistive technology! This episode of Live Parkinson's Live an Exceptional Life dives into the world of Parkinson's Power Tools - assistive technologies designed to empower you and make daily living easier. We'll explore a r…
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We had the pleasure of interviewing Dr Michael Okun on the topic of "Practical strategies for living a happier life with Parkinson's". Dr Okun is a worldwide recognised leader on Parkinson’s disease, is the distinguished Professor of Neurology and Director of the Norman Fixel Institute for Neurological Diseases at the University of Florida Health. …
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In "Parkinson's in Me," Season 4, Episode 3, titled "A Day in the Life of Part 2," listeners are invited into the daily experiences of Daniel, a man diagnosed with early onset Parkinson's disease at 42. This episode continues the narrative from the previous one, offering a detailed and intimate portrayal of a day in Daniel’s life. He shares the nua…
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In this raw and emotional conversation, four women with Parkinson’s living in four different countries discuss the challenges faced because of delayed diagnosis, hormonal changes, lack of information and treatment, research inequity and gender biases. They share how they live better with the disease by advocating for themselves with their health ca…
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In this episode (video here on YouTube), we explore the potential of Coenzyme Q10 (CoQ10), also known as Ubiquinone, in the treatment of Parkinson's disease symptoms. CoQ10, a naturally occurring compound found in every cell of the body, plays a crucial role in mitochondrial function and energy production. Research suggests that individuals with Pa…
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Send us a Text Message. Living with Parkinson's? Don't miss this episode of the Live Parkinson's - Live an Exceptional Life podcast! We dive deep into the latest advancements in Parkinson's treatment (2023-2024), exploring promising new approaches and groundbreaking clinical trials. Here's what you'll learn: Emerging therapies with the potential to…
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What do you know about your gut? In the last several years, research has led us to a more detailed understanding of the role of the gut – which includes the stomach, intestines, and colon. This isn’t your father’s understanding of the gut. So, what does the gut have to do with it? It being the possible cause of many diseases including Parkinson’s d…
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Send us a Text Message. Parkinson's disease is often associated with older adults, but a surprising number of people are diagnosed in their 40s and beyond. In this episode of LiveParkinson's - Live an Exceptional Life, we meet a young fitness instructor, Megan Anderson who has dedicated herself to helping these patients. Join host Chris Kustanbaute…
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Special Bonus Episode: Conversation with CND Life Sciences In this special bonus episode, BGF Executive Director Katrina Kahl talks with CND Life Science's Chief Medical Officer and Co-Founder Todd Levine, MD about the benefits of the company's evidence-based test to help diagnose synucleinopathies, which includes Parkinson's disease. More about Dr…
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Join me as I speak with a panel of guests today including Molly Cupka, the Director of Sportrock Climbing Center, Alexandria and Founder of Up Ending Parkinsons. Molly is determined to spread the addictive sport that is rock climbing throughout the Parkinsons community. In addition, Molly is also dedicated to funding research and sharing simple, ev…
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Send us a Text Message. Unraveling the Maze: Parkinson's vs. Dementia (One Man's Journey & Caring for Mom) Living with Parkinson's? Wondering about the differences between Parkinson's and Dementia? This episode of Live Parkinson's Live and Exceptional Life tackles both! Join your host, Chris Kustanbauter, as he breaks down the key differences betwe…
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Living with Parkinson’s comes with a variety of symptoms, some of which can be unexpected, and frankly, embarrassing. Drooling, bladder issues and sexual dysfunction are hard to talk about, even with loved ones or your doctor – and can affect your self-image, your intimate relationships or the way you move through the world. In audio from this Thir…
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We were delighted to host Dr Michelle Sexton who presented on the topic of "How can medical cannabis help people with Parkinson's" and here is the recording of the event. About the speaker:- Dr. Sexton is an integrative medicine specialist and respected pioneer in the field of medical cannabis. She has over thirty years of experience as a midwife, …
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In this episode (watch on YouTube here), we delve into the powerful connection between the ketogenic diet, supplements, and their role in healing sick mitochondria, as well as their potential to treat Parkinson's disease. As mentioned in the previous video, mitochondria are often referred to as the "powerhouse of the cell", responsible for producin…
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Alice A. Holstein, Ed.D was diagnosed with bipolar mood disorder at the age of 51, which interrupted her career and produced some 12 years of intense suffering with many manic episodes, many hospitalizations, thousands of dollars spent and overall, a bleak prognosis of recovery. She lives now, as an elder, with a full if careful life of extraordina…
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Host Larry Gifford closes our four-part series on stigma and Parkinson's with a conversation with Brian Grant about his personal experiences with stigma and his thoughts on the stereotypes of people with Parkinson's disease. More about Brian Grant: Brian Grant was an NBA idol, known for tenacious rebounding and a fearless attitude on the court. Dur…
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The topic today is one of those difficult to discuss symptoms that most of us try to avoid and deal with it on our own. Not a great idea. So, let’s learn about and discuss our bladders. You might have an overactive one which is also referred to as hyperactive or underactive one also referred to as hypoactive. Unfortunately, the probably of anyone h…
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