My Brain Tumour is Pressing on my Optic Nerve

Aunty M Brain Tumours Talk Show

Emma had been experiencing persistent headaches and dizziness for six months. Despite multiple visits to her GP, various medications, and even trying beta-blockers, her condition didn't improve, and the headaches became unbearable. Emma decided to seek private medical care, leading to an MRI that delivered devastating news: she had a brain tumour pressing against her left optic nerve. She would soon be having two brain surgeries and radiotherapy.

After further consultation with a radiologist, Emma was informed that she likely had a meningioma. Unfortunately, complete removal of the tumour was not possible as it was wrapped around her optic nerve. The medical team proposed surgery to remove as much of the tumour as possible, followed by radiotherapy. However, the nature of the tumour meant that she would still lose part of her sight.

To help with the double vision caused by third nerve palsy, Emma consulted an ophthalmologist who designed a special contact lens for her. This lens, with a black backing, allows her to wear it daily and significantly reduces her double vision.

Here she shares her experience.

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