Luka & the Lights: Introducing the First Robot with ALS

I'm Dying to Tell You

In this episode I chat with those who created Luka, the first robot to have ALS and hear the inspiration behind it all. I chat with the team that is bringing the first robot with ALS to the big screen. The film, Luka & the Lights, is inspired by the real-life of Sascha Groen and her husband Anjo Snijders who is battling ALS. Sascha created the robot character Luka and wrote and illustrated his story to help explain to their children what’s happening with their dad who was diagnosed with ALS. Also in our chat is Toby Cochran, Director and Adrian Ochoa, Producer who are leading a professional animation team to bring this film to life. This film is both heartbreaking and inspiring and will create ALS awareness and help children and adults understand what ALS is. Sascha and Anjo wrote the story explaining the ALS disease with the help of the robot lights. I love how the significance of the lights helps illustrate what ALS does. This one of a kind short animation film will be made available for free on various media. In this film we get to know the little robot Luka. We see how everyday tasks get harder and how they find out Luka is ill and what this means for Luka’s life and environment. The film does not use words, but music, which makes it internationally applicable. I know this film will help so many families affected by this terminal disease. Thank you for listening and sharing with a friend. Hugs, Lorri

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