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Nội dung được cung cấp bởi Amy Wang-Hiller. Tất cả nội dung podcast bao gồm các tập, đồ họa và mô tả podcast đều được Amy Wang-Hiller hoặc đối tác nền tảng podcast của họ tải lên và cung cấp trực tiếp. Nếu bạn cho rằng ai đó đang sử dụng tác phẩm có bản quyền của bạn mà không có sự cho phép của bạn, bạn có thể làm theo quy trình được nêu ở đây https://vi.player.fm/legal.
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Unveiling the Unseen Part 1: Aella's Fight for Diagnosis Amidst Medical Gaslighting

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Nội dung được cung cấp bởi Amy Wang-Hiller. Tất cả nội dung podcast bao gồm các tập, đồ họa và mô tả podcast đều được Amy Wang-Hiller hoặc đối tác nền tảng podcast của họ tải lên và cung cấp trực tiếp. Nếu bạn cho rằng ai đó đang sử dụng tác phẩm có bản quyền của bạn mà không có sự cho phép của bạn, bạn có thể làm theo quy trình được nêu ở đây https://vi.player.fm/legal.

In this gripping episode of Occult Awareness, Aella Askew bravely shares her harrowing journey through a maze of undiagnosed chronic illnesses and medical gaslighting.
From a childhood filled with pain and dismissed symptoms to a life-altering spine injury, Aella's resilience shines through as she fights for answers and validation. Join us as we delve into the complexities of invisible illnesses, the power of self-advocacy, and the importance of finding community and support.

  • Childhood and the Circus
    • Aella Askew, a woman with Ehlers-Danlos syndrome (EDS) and other chronic illnesses, shares her lifelong struggle with pain and medical invalidation.
    • Aella's journey took an unexpected turn when she joined the circus, where she found a sense of belonging among fellow misfits. However, her physical ailments worsened over time, leading to her semi-retirement in 2018.
  • A Life-Altering Injury
    • While working as a metal fabricator, Aella sustained a severe spine injury exacerbated by a chiropractor's mishandling, leaving her hospitalized and homeless.
    • Aella describes her struggles after the injury, including homelessness, reliance on Medicaid and disability benefits, and the challenges of finding affordable housing.
  • Medical Gaslighting and Misdiagnosis
    • Aella discusses her experiences with medical invalidation and misdiagnosis.
    • Aella talks about her advocacy efforts and how she became her own "mama bear" in seeking answers and support.
    • She discovered the importance of community and connected with others with EDS, learning about ring splints and other resources.
  • PANS/PANDAS Diagnosis
    • Aella shares her various diagnoses, including PANS/PANDAS, a neuroinflammatory disorder that can cause a range of symptoms.
    • She discusses the cause of her PANS/PANDAS and the challenges of managing its symptoms, such as OCD, rage attacks, and tics.
  • Ongoing Challenges and Medical Gaslighting
    • Aella expressed her frustration with the medical system and the lack of understanding and validation she receives from doctors.
    • She details specific instances of being dismissed and misdiagnosed, highlighting the impact this has on her mental and emotional well-being.
  • Living with Chronic Pain and its Impact on Daily Life
    • Aella discusses the difficulties of finding effective treatments and the constant struggle to manage her symptoms.
    • She also shares her experiences with physical therapy and the limitations she faces due to her condition.

Don't miss this eye-opening conversation that sheds light on many's unseen struggles.

----more----

More detailed blog posts will be at www.thrivexstrive.com/occult-awareness (coming soon), so please follow us on Instagram @Occult_Awareness to stay informed of the latest updates.

Watch the video format on Youtube @OccultAwareness
Please leave your review. Your feedback is so valuable to us! And it will help us reach more listeners like you.----more----

  continue reading

3 tập

Artwork
iconChia sẻ
 

Fetch error

Hmmm there seems to be a problem fetching this series right now. Last successful fetch was on May 24, 2024 13:24 (23d ago)

What now? This series will be checked again in the next hour. If you believe it should be working, please verify the publisher's feed link below is valid and includes actual episode links. You can contact support to request the feed be immediately fetched.

Manage episode 419636823 series 3574614
Nội dung được cung cấp bởi Amy Wang-Hiller. Tất cả nội dung podcast bao gồm các tập, đồ họa và mô tả podcast đều được Amy Wang-Hiller hoặc đối tác nền tảng podcast của họ tải lên và cung cấp trực tiếp. Nếu bạn cho rằng ai đó đang sử dụng tác phẩm có bản quyền của bạn mà không có sự cho phép của bạn, bạn có thể làm theo quy trình được nêu ở đây https://vi.player.fm/legal.

In this gripping episode of Occult Awareness, Aella Askew bravely shares her harrowing journey through a maze of undiagnosed chronic illnesses and medical gaslighting.
From a childhood filled with pain and dismissed symptoms to a life-altering spine injury, Aella's resilience shines through as she fights for answers and validation. Join us as we delve into the complexities of invisible illnesses, the power of self-advocacy, and the importance of finding community and support.

  • Childhood and the Circus
    • Aella Askew, a woman with Ehlers-Danlos syndrome (EDS) and other chronic illnesses, shares her lifelong struggle with pain and medical invalidation.
    • Aella's journey took an unexpected turn when she joined the circus, where she found a sense of belonging among fellow misfits. However, her physical ailments worsened over time, leading to her semi-retirement in 2018.
  • A Life-Altering Injury
    • While working as a metal fabricator, Aella sustained a severe spine injury exacerbated by a chiropractor's mishandling, leaving her hospitalized and homeless.
    • Aella describes her struggles after the injury, including homelessness, reliance on Medicaid and disability benefits, and the challenges of finding affordable housing.
  • Medical Gaslighting and Misdiagnosis
    • Aella discusses her experiences with medical invalidation and misdiagnosis.
    • Aella talks about her advocacy efforts and how she became her own "mama bear" in seeking answers and support.
    • She discovered the importance of community and connected with others with EDS, learning about ring splints and other resources.
  • PANS/PANDAS Diagnosis
    • Aella shares her various diagnoses, including PANS/PANDAS, a neuroinflammatory disorder that can cause a range of symptoms.
    • She discusses the cause of her PANS/PANDAS and the challenges of managing its symptoms, such as OCD, rage attacks, and tics.
  • Ongoing Challenges and Medical Gaslighting
    • Aella expressed her frustration with the medical system and the lack of understanding and validation she receives from doctors.
    • She details specific instances of being dismissed and misdiagnosed, highlighting the impact this has on her mental and emotional well-being.
  • Living with Chronic Pain and its Impact on Daily Life
    • Aella discusses the difficulties of finding effective treatments and the constant struggle to manage her symptoms.
    • She also shares her experiences with physical therapy and the limitations she faces due to her condition.

Don't miss this eye-opening conversation that sheds light on many's unseen struggles.

----more----

More detailed blog posts will be at www.thrivexstrive.com/occult-awareness (coming soon), so please follow us on Instagram @Occult_Awareness to stay informed of the latest updates.

Watch the video format on Youtube @OccultAwareness
Please leave your review. Your feedback is so valuable to us! And it will help us reach more listeners like you.----more----

  continue reading

3 tập

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