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Mel Lancaster & Katelin (USA) – Trails to a Texas Trial and beyond (Part 1)
Manage episode 327335873 series 3222835
Nội dung được cung cấp bởi Tracey Hoyng. Tất cả nội dung podcast bao gồm các tập, đồ họa và mô tả podcast đều được Tracey Hoyng hoặc đối tác nền tảng podcast của họ tải lên và cung cấp trực tiếp. Nếu bạn cho rằng ai đó đang sử dụng tác phẩm có bản quyền của bạn mà không có sự cho phép của bạn, bạn có thể làm theo quy trình được nêu ở đây https://vi.player.fm/legal.
Mel's daughter Katelin is 26 and living with Rett Syndrome.
It was such an honour to sit down with Mel not only once, but twice, for the podcast. I openly admit that I have alot of learning to do, so talking with Mel was such a great learning experience for me.
We talk about a range of things - from her writing, to Atypical Rett Syndrome, to the clinical trials they were involved in. Mel's blog Trail to a Texas Trial is an amazing recount of everything they've experienced with Rett Syndrome and with the Trofinetide trial.
This is Part 1 of our chat!
To find out more about this episode and links to the topics we discussed, please visit teamjovie.com/podcast.
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Let me know what you think about the Remarkable podcast and these amazing Rett Syndrome families.
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Thanks so much for listening,
Tracey
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