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Nội dung được cung cấp bởi The Bonnell Foundation and Laura Bonnell. Tất cả nội dung podcast bao gồm các tập, đồ họa và mô tả podcast đều được The Bonnell Foundation and Laura Bonnell hoặc đối tác nền tảng podcast của họ tải lên và cung cấp trực tiếp. Nếu bạn cho rằng ai đó đang sử dụng tác phẩm có bản quyền của bạn mà không có sự cho phép của bạn, bạn có thể làm theo quy trình được nêu ở đây https://vi.player.fm/legal.
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The Crossing for CF: On Location (West Palm Beach, Fla.)

49:51
 
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Manage episode 370898371 series 2902409
Nội dung được cung cấp bởi The Bonnell Foundation and Laura Bonnell. Tất cả nội dung podcast bao gồm các tập, đồ họa và mô tả podcast đều được The Bonnell Foundation and Laura Bonnell hoặc đối tác nền tảng podcast của họ tải lên và cung cấp trực tiếp. Nếu bạn cho rằng ai đó đang sử dụng tác phẩm có bản quyền của bạn mà không có sự cho phép của bạn, bạn có thể làm theo quy trình được nêu ở đây https://vi.player.fm/legal.

The CF community is a small one. It’s made up of 40,000 people with the disease in the U.S. When you add two parents to the mix that’s 80,000 parents, then there are grandparents, siblings, Aunt and Uncles, friends and you get the picture. We have a small, tight knit community.

Laura Bonnell thought it was important that the Bonnell Foundation reach out to volunteer for the Pipers Angels Crossing for CF event. It was the weekend of June 23rd, 2023. It’s so important that we support one another.

This podcast playfully shows the camaraderie and strength of our wonderful CF community.

Travis Suit, the Founder of Piper’s Angels is a sweet soul and the father of Piper who has CF. Recently Travis discovered he has CF (and his two sisters do as well). In 2017 Travis started the paddle event. Paddlers start in Bimini, Bahamas, and land on the Beach in West Palm Beach. It was an incredible evet to witness.

Hats off to everyone who participated. I have so many new friends and it was great to see people in person, finally.

Thanks to Beth Vanstone (producer) who met me in West Palm Beach from the Toronto area. I could not have done it without you. We really are very funny in this wonderful podcast (and in general).

Thanks to editor Jon Gay for putting this podcast together as I recorded it in short segments on my iPhone.

The Bonnell Foundation website: https://thebonnellfoundation.org

Bonnell Foundation email: thebonnellfoundation@gmail.com

Thanks to our sponsors:

Vertex: https://www.vrtx.com

Genentech: https://www.gene.com

Viatris: https://www.viatris.com/en

Please like, subscribe, and comment on our shows, wherever you get your podcasts.

Please consider making a donation: https://thebonnellfoundation.org/donate/

The Bonnell Foundation website:https://thebonnellfoundation.org

Email us at: thebonnellfoundation@gmail.com

Thanks to our sponsors:

Vertex: https://www.vrtx.com

Viatris: https://www.viatris.com/en

  continue reading

127 tập

Artwork
iconChia sẻ
 
Manage episode 370898371 series 2902409
Nội dung được cung cấp bởi The Bonnell Foundation and Laura Bonnell. Tất cả nội dung podcast bao gồm các tập, đồ họa và mô tả podcast đều được The Bonnell Foundation and Laura Bonnell hoặc đối tác nền tảng podcast của họ tải lên và cung cấp trực tiếp. Nếu bạn cho rằng ai đó đang sử dụng tác phẩm có bản quyền của bạn mà không có sự cho phép của bạn, bạn có thể làm theo quy trình được nêu ở đây https://vi.player.fm/legal.

The CF community is a small one. It’s made up of 40,000 people with the disease in the U.S. When you add two parents to the mix that’s 80,000 parents, then there are grandparents, siblings, Aunt and Uncles, friends and you get the picture. We have a small, tight knit community.

Laura Bonnell thought it was important that the Bonnell Foundation reach out to volunteer for the Pipers Angels Crossing for CF event. It was the weekend of June 23rd, 2023. It’s so important that we support one another.

This podcast playfully shows the camaraderie and strength of our wonderful CF community.

Travis Suit, the Founder of Piper’s Angels is a sweet soul and the father of Piper who has CF. Recently Travis discovered he has CF (and his two sisters do as well). In 2017 Travis started the paddle event. Paddlers start in Bimini, Bahamas, and land on the Beach in West Palm Beach. It was an incredible evet to witness.

Hats off to everyone who participated. I have so many new friends and it was great to see people in person, finally.

Thanks to Beth Vanstone (producer) who met me in West Palm Beach from the Toronto area. I could not have done it without you. We really are very funny in this wonderful podcast (and in general).

Thanks to editor Jon Gay for putting this podcast together as I recorded it in short segments on my iPhone.

The Bonnell Foundation website: https://thebonnellfoundation.org

Bonnell Foundation email: thebonnellfoundation@gmail.com

Thanks to our sponsors:

Vertex: https://www.vrtx.com

Genentech: https://www.gene.com

Viatris: https://www.viatris.com/en

Please like, subscribe, and comment on our shows, wherever you get your podcasts.

Please consider making a donation: https://thebonnellfoundation.org/donate/

The Bonnell Foundation website:https://thebonnellfoundation.org

Email us at: thebonnellfoundation@gmail.com

Thanks to our sponsors:

Vertex: https://www.vrtx.com

Viatris: https://www.viatris.com/en

  continue reading

127 tập

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