104 To LIVE Would Be An Awfully Big Adventure

LYME Voice

Josey Buzby was just starting high school when ongoing health issues and ANXIETY forced her to do homebound (online) schooling.

Key Takeaways:

• “I wanted the normalcy of seeing my friends every day.”
• I wanted to be in school. But I couldn’t stay awake, let alone remember anything.
• The fluorescent lights hurt my eyes.
• The short term memory loss and not being able to speak the right words (word loss) and the right time made school almost impossible. (4:00)
• Lyme turned my life upside-down.
• Anxiety and “weird pains” were my first symptoms.
• “I know something is wrong”
• After being fired by my physician who didn’t believe I had Lyme. I was sent on an incredibly weird, awful but exciting journey to find out what was wrong. (7:00)
• My moods were out of control. (The anti-hulk medication)
• My mom really fought to figure out what was going on.

• “I did a 180-degree turn as a human.”

• “Lyme is horrible. It’s this thing you can’t see. You can’t see Lyme.”

• Even if I don’t get better, I can still watch people grow. (17:00)
• I never thought I could be a functional member of society.
• You can laugh or you can cry, when situations are out of your control. We choose to laugh.
• Comedy was a way to cope with what was going on.
• You give people in your life “select information” because you don’t want to freak them out.
• My friends had to make a choice to “stay with me” and I had to make a choice to “let them stay” in my life. (I didn’t want people to see me if I hadn’t showered in days)
• We shut a lot of people out, because they don’t understand what is going on.
• I didn’t want to know anything about Lyme disease. I didn’t want to watch the movies or read any of the books. My mom went into research mode, I didn’t want to know anything.
• “To LIVE would be an awfully big adventure”= my survival TATTOO

(I couldn’t get it until I was done with treatment)

• “My Mom is the whole reason I lived.”

• After being homebound for years. Reengaging with society was hard. I kept wondering if I could make friends again.

• What if I can’t make friends anymore?

• Training to be an EMT forced me to interact.
• You feel like you have been robbed.
• What would you say to other teens battling Lyme during highschool? “I’m sorry you have no control. But you’ll get it back. Take the small wins as they come.”
• You can be a human again!
• It felt unreal to have normal worries.
• “This is what normal people do.”
• When you want to give up, you have to find something to look forward too.”

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• Lyme Documentary-Disappearing From Society, Life with chronic Lyme in 14 minutes…Documentary
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